Introductions - Recent Threads

Greetings fellow T1&2D comrades!!

Eric — Fri, 17 May 2013 06:41:36 GMT

Nice to find this forum!

Been a T1D for almost 40 years. No sign of problems, so, so far so good!

Also have Celiac,... lucky me, and I am a HUGE bread fan. I don't eat much Gluten Free produced foods, as I don't care for all the additives. Tried an almost vegan diet (couldn't give up cheese), but that made for a month long cleanse. I have to admit I felt really good on that diet, but just got SOOOO tired of vegetables only and felt hungry most of the time.

I live in Colorado and volunteer at the Rocky Mountain chapter of JDRF doing mentoring work.

I like being active and tennis and cycling are my major exercise activities.

See you all around the forum!

Cheers,

Eric

Home again

mamasrose — Thu, 25 Apr 2013 16:53:00 GMT

Hi, I'm one week from the hospital I just found out I had type one diabetes, I was rushed to the ICU after passing out (And being dropped down the stairs my pinkie is still numb) I'm 13 years old and want to be a dietitian when I grow up. I have been planning all my meals and figuring out the carbs. Going into keoacidosis was the scariest thing that has happened in my life, and it was on my dads birthday.

Ola from Las Vegas

bluelemur — Fri, 19 Apr 2013 04:11:43 GMT

Just joined in because parents suggested it, but it isn't that bad, I can facebook without facebooking and paying for stuff I thank them

#BUTTER

#BACON

(May be crazy sometimes, but rarely serious, when I'm serious, it isn't good or it might be)

I'm a victim of diabetes, but I find it easy to manage, if you have probs telling when you are high or low, just reply ok

Thanks for your time and ADIOS, (Can't speak Spanish fully.)

Hi From Chicago!

Vanessa622 — Sun, 24 Feb 2013 04:35:35 GMT

Hi Everyone,

I'm 26 and was diagnosed with Type 1 in 2009. I'm glad to be a part of this community and looking to swap information and learn about diet/nutrition :)

-Vanessa

Daughter Diagnosed with Type 1

Jennifer — Mon, 14 Jan 2013 22:43:14 GMT

Hi,

This is all new to me. My daughter(15) was diagnosed with Type 1 May 2012..pretty scary it was. Still getting used to the idea she is a Type 1 Diabetic...everything we do revolves around this...do you have your insulin, do you have your needles, do you have......do you have? She manages it well, much better than I(mom) does, that's for sure. I guess as a mom I will always have that worry in my head. Any advice?

Hello (:

Andrew — Thu, 27 Dec 2012 19:06:44 GMT

Hello everyone. Just stopping by to learn and hopefully become a better, healthier me. I'm a 22 year old T1 diagnosed 10 years ago but not on a pump yet. This is my 1st post so I'll share my story:

I did great my first few years of having diabetes. I think my family handled it pretty well. I lost weight during onset which was a good thing because I was heavy. (Now weighing ~130). My BG levels were doing good and I had a great endocrinologist...Until my mom lost her job and insurance and everything went south. Well except us, we moved to Virginia from Florida lol. Upon moving here and being separated from my (now 24 y/o) brother, i began becoming depressed and skipped shots which, needless to say wasn't a good decision. Then complications began like Neuropathy and gastroparesis. Not only that, I've been hospitalized CONSTANTLY for DKA. Most recent episode was last week....I know this isn't the site to do so but please don't judge me. My highest blood sugar reading from the Lab in the ER was 1776! yes thats one THOUSAND, I truly thank God I'm alive. That was my wake up call because I was unresponsive for 2 days. I desperately need a pump now because my A1C is at 13.4 and I do not want any more complications. My neuropathy has resolved pretty much completely and no more complications.

I join this site in hopes to share my experiences, thoughts, and offer any insight as well as accept any and all that are given. I appreciate all honesty and bluntness. My family is very supportive, I'm still at home with my mother, working from home because of flexibility with college as well as not having to call in sick to a job. My mom is pretty frustrated with me at this point and I am with my self as well. In all honesty I may need to see a psychologist (do I?) because I tend to blatantly mistreat myself. I skip taking blood sugar readings and my novolog at times (Trying a lot harder now).

That was the honest true part of my situation. Now the perspective coming from someone with the disease for some parents who may wonder what and why their child is doing this:

Some (like myself) are just honestly frustrated with not being able to be NORMAL anymore. Why? Quite frankly its annoying to do. Finger pricks DO HURT, the injections don't really but the pain is more from just having to do it.

Going out with friends, Sometimes I'd like to just go and eat and not worry about having to check or take my insulin (that's why I skip sometimes)...Yes I know I'm damaging my body but THIS SUCKS!!! I'm sorry if this is more like a vent or a blog rather than insight but this is just how I feel and maybe someone else is too but can't find the words to express.

While I type this I will offer advice to parents seeking help based on my experiences as the 'child' and what I'm doing wrong.

Parents:

If your child is constantly getting sick and needing doctor's help but still 'say' theyre doing the right things, CHECK THEIR METERS FOR DATES AND TIMES. (ive lied to my mom even in front of the doctors) I know you'll swear by your kid to save face...do it, save the embarrassment but make sure you let them know the truth.

More than likely your child will eat the wrong things once they feel comfortable with Diabetes, its okay...they'll be okay but make sure theyre taking their insulin and not TOO much of the wrong things.

It's honestly a dedication to remember and do the right things so helpfully and sternly if need be remind them when they need to do so.

Kids will tell you a number just to get you off their backs. Double check this number when possible.

If your child is like me, there might be little you can do right now that will stop them from doing what THEY WANT! They'll learn on their own but do NOT watch them damage themselves. Yes, sit back some days and maybe let them feel cruddy because it's a feeling WE ALL HATE.

If you're not diabetic yourself as a parent, and never have stuck yourself with a needle or for blood sugars...try it. You might get .5% of what they go through.

That may be it for now, I'm sorry for the long introduction but I felt compelled to write my story in hopes of helping someone out there. You can email me or private message or call. ANYthing you want I'll try my best to give an advice based on how I feel or what I've done.

If you think I'm crazy....i think so too lol but please understand or try to understand where I'm coming from.

Andrew

Hello

Don Bissett — Thu, 27 Dec 2012 03:52:22 GMT

I joined a few days ago. I'm a 59yo type 1 diagnosed when I was 35. I live in the mountains of Colorado where I work for a hospital as a LIcensed Professional Counselor and teach part time in the ski school for Vail Resorts. I've been married for 12 years and have a 7yo son. In the last few years I've had several episodes where I lost conciousness or awareness of my surroundings subsquent to low bs. In one episode I was combative, not asaulting anyone but resistant to receiving help from my wife. My wife and son have found these episodes alarming. My son is fearful of being at home alone with me. My wife is a physician and quite aware of type 1 and the associated struggles but she is at a loss on how to manage her anxiety related to my low episodes. I'm doing my best to not have low episodes and have had only one in the last 3 months. Any ideas on how to help a family member manage their fear?

Hello!

Carlyjo74 — Thu, 06 Dec 2012 01:11:29 GMT

Hi there! My name is Carly. My baby girl is 13! She was diagnosed a year ago. I just joined T1nation and was reading through stories with tears in my eyes. Everyone is so amazing and positive and strong. Its incredible to me how truly strong our kids can be. My daughter was the last person I ever thought could accept something like this. She has made me so proud and has embrassed it and rarely complains, even when she has every right too! She amazes, and teaches me everyday! This year has been my adjustment year but now i look forward to meeting parents and sharing stories and helping one another. I'm so glad I found this group. Thank You!

Concerned Mom Needs your Advice!

sjglow — Wed, 10 Oct 2012 15:22:27 GMT

Hi Everyone,

It's a pleasure to finally be a part of this online group.

My son Evan (did you know the meaning of "Evan" is young warrior? coincidence???), has had diabetes since age 23 months. He's 14 1/2 years old now! So you'd think I'd be an expert by now, but of course I'm not.

The problem I really need your help with is this: like every teenager (myself included, when I was one), this kid LOVES to eat. He will go through half a box of cereal, half a bag of chips, you get the idea...

Miraculously, his A1c isn't that bad, tending to hover between 7.8 and 8.2. Still, we would prefer a tighter level of control. I'm just certain it's the binge eating that brings this A1c up.

Does ANYONE have any suggestions that WORKED? We've tried everything, taking away computer privileges, reducing the amount of snack food in the house, yelling/threatening/pleading. It just makes him upset, and he doesn't learn from it.

I really need your help and advice. And I'm not afraid of a horror story or two either.

Thanks so much, Stephanie

Hi Everyone!

Jenn — Mon, 08 Oct 2012 21:12:45 GMT

My name is Jenn and im a parent of a little 6 year old girl who just got diagosned with T1D in May 2012. We are still having our ups and downs trying to figure all of this out. Im looking forward to connecting with you guys!

Hi everyone

NiceDiabetes — Tue, 02 Oct 2012 09:31:18 GMT

Hi, my name is Sam and I have recently joined the forum. Diabetes is however not something new to me,,

Ive had Type 1 for over 25 years, being pumping for over 5 (Deltec Cozmo and now Minimed Veo)

I lived over in Europe for 10 years but now back in Australia's favourite sporting capital and looking forward to sharing the highs and lows of our diabetic lives.

We are donating to JDRF for each meal plan sold. We are offering $100 off to diabetics also.

mstar — Mon, 17 Sep 2012 01:27:31 GMT

I want to respect the rules of this forum so please forgive me if we are crossing the line.

We began a special 4 days ago for diabetics. Our food is saves you time, money, sanity and keeps your blood sugar low.

We began testing with type 2's about 8 weeks ago and the results speak for themselves (see here: http://youtu.be/lwdn_CMextM)

This is the info with the sale details: http://www.youtube.com/watch?v=_efO-p7d0V0

Again, we are offering $100 off which basically means you can get 3 meals and 2 snacks for around $10 a day.

No these are not TV dinners or 'Chef' inspired french cuisine. It's real food...meats, vegetables, eggs, nuts. only requiring 2-3 minutes in a microwave and kids love our food.

http://www.personaltrainerfood.com

code: type1

For every program sold, we donate $10 to the JDRF

Thanks to JDRF and their tireless, passionate commitment to help.

Hello Everyone!

Sarah — Mon, 10 Sep 2012 04:20:35 GMT

Hello,

My name is Sarah, I'm 25 and have type one diabetes. I live in Vancouver and try to get involved in as many JDRF events as I can. Feel free to ask me any questions orr follow me on twitter at www.twitter.com/sarahbesler.

Have a great evening and welcome to all the newbies :)

Sarah

Hello Everyone

Drew Harvey — Sat, 08 Sep 2012 23:31:18 GMT

Hey I am Drew,

I'm 19 and in college and I love advice and help from others. I also like to help with anything I can as well. I have been diabetic for 9 years this November.

If you exercise and have type one please view my recent post to help with some of my questions...

http://juvenation.org/juvenation_forums/exercise/f/129/t/17049.aspx

6 year old son

Jim Flood — Tue, 04 Sep 2012 19:41:35 GMT

My son Treyton was diagnosed in November 2011. He has been dealing with it fairly well probably better than his parnets have.

He was on a pen from the on set of the diagnosis but about 3 months ago we switched to an Omnipod. This pump has been really great for his/our active lives.

With being new to the world of type 1 diabetes we are really struggling with maintaining a "good" blood glucose level. He seems to be high for no particular reason and then hit a low for no apparent reason???? Is this normal??? We have some guidance from our endo but get little time with him.

Any help and tips would be GREATLY appreciated.

Thank you for your time.

Hello. My 11 year old son was diagnosed 8/25/12. He is a competitive tennis player. Any other young athletes with diabetes? I am confused how to approach his training with diabetes

10ssmom — Sun, 02 Sep 2012 00:56:18 GMT

WOW! Suddenly not so alone! YAY

Ren — Thu, 23 Aug 2012 00:13:24 GMT

Hi everyone, my name is Ren and I am a mummy with a dynamic little 3 year old daughter, Chiara Dior .

Kikki Dee as she is known, has been type 1 diabetic for one year now. What a road that has been! You can check out our story here if you like xx (I know time is precious xx )

http:// lapetiteprincesseontheblog.blogspot.com.au/2012/08/chiara-dior-day-today-is-not-only-are.html

and

http://fundraise.teamcurediabetes.org.au/hero_pages/view_posts/renee_manea

There is an uncomfortable comfort (not that that makes sense) knowing that there is this brilliant place here where we all get it! the daily, hourly struggles. The hardship, pain, successes and triumph all at the same time! Like most of you i am sure there are great days and not so.

Since day one we have been actively raising money ... We want a new pancreas!! Here's hoping hey!

Until then Chiara and I continue to raise money through JDRF Australia and our facebook page La Petite Princesse. We are currently holding a comp... giving away a table full of hair accessories in exchange for a little donation from our fans! We are trying everything we can to help cure this life changing illness for everyone!

If you know anyone who may be interesetd... please feel free to invite them over to our page... the more the merrier!

Anyway... i hopw you all have a very "level day". Look forward to touching base with you all and meeting some new faces to learn what might be on the road ahead for us as our little babe grows older xx

Lots of Love, and hope to meet you soon

Ren, Chiaras very protective mummy!

xxx

Hello! New here, mother of a 6 year old daughter with Type 1

Laura Cassity — Thu, 16 Aug 2012 02:32:24 GMT

Hello. My name is Laura. I am a mother to two, a son who is 10 and a daughter who is 6. My daughter Faith was diagnosed with type 1 in October of 2010. It seems unreal that we are almost 2 years into this. I also did not know that there was so much support out there, I found this site through my local JDRF. To be honest, for the first year I think we were in survival mode, trying to learn to help Faith learn to live with this. I wish I had reached out sooner but it was very overwhelming when she was first diagnosed. I was also trying to finish graduate school at the time. We had a lot going on. It all started with her exhibiting symptoms of what I thought was a UTI. I took her to the doctor and within a few hours we found ourselves admitted in the hospital and being told our daughter was very ill. I am sure all of you can relate to the initial shock. We spent a week in the hospital getting her levels under control and then were sent home with a ton of literature and prescriptions, having to learn how to cope. I will never forget how scared she was and how scared I was for her. I vividly recall one of the doctors telling me that within 3 weeks I would know more about diabetes and about how to manage her diabetes better than the doctors. At the time I did not believe him, but now I understand. So, that is my story. I am here in hopes of receiving and giving support. I hope to make new friends, and how to better help Faith to cope with having diabetes. It seems that she is having a lot of anger over it which just started in the last 6 months. She will not talk about her feelings with me about it, in fact, she does not want to ever discuss anything related to her diabetes. She will tell me that she hates diabetes, and just a week ago she told me and my son that we were lucky that we do not have diabetes. I sometimes do not know how to respond to these emotions. I end up telling her that it is OK to be angry, but that we have to handle our anger in a healthy manner. I do my best but it is hard when she will not talk to me about how she is feeling. I do not pry or pressure her, as I know that it will be met with even more resistance. I try to let her feel that she has some control over her care, such as allowing her to choose her injection sites ect.. I appreciate any support or advice that I can get here. Thank you for being here, and if you made it through this long post, thank you!

Hullo! :)

lianoel — Thu, 26 Jul 2012 21:50:06 GMT

Hi, everyone. My nickname is Lia and I was just diagnosed on May 14th. I'm a homeschooled junior in highschool and I have four siblings, all of whom have been incredibly supportive and involved during these past few months. I've always known people with diabetes, so I was pretty prepared when I was diagnosed - although it doesn't make it any easier! I've been overwhelmed with support from friends; one of my friends' brother is diabetic, as is the daughter of the pastor at my church, four of the girls in my youth group, and my best friend! I guess the hardest part of this has been the lows. I can't tell when my blood sugar drops. There's no shakiness, no irritability, or anything like that. I only know if I check. Thankfully I've never been too terribly low. The lowest I've ever been is 58.

I'm currently using the humalog pens right now, as well as lantus. I'm pretty interesting in the pump, since it's a hassle to constantly have to drag around syringes/pen needles and the pen. I'm out of the honeymoon stage already, according to my doctor, so that's slightly annoying, but it makes calculating my insulin much easier. I've also horrified the majority of the moms of kids with diabetes in my church. I told them that I guesstimate carbs when I'm out and about with friends. :P

Kik messanger

Sarah — Wed, 25 Jul 2012 16:34:48 GMT

Hello i am sarah and i am in grade 6. i am looking to have contact with people from 9 to 12 or even some kids parents like i have met terry and jess who are very sweet. i am on kik messanger and my user is sasbear1. search me =)...... i enjoy talking with other people with type 1.... thnx

Hello my name is Sarah and I'm new to Type 1

Sarah — Wed, 25 Jul 2012 01:10:04 GMT

I am ten years old and was just diagnosed on July 7, 2012. My dad thought I had the the stomach flu because I couldnt stop puking. I was rushed to the hospital by ambulance with IVs everywhere and I almost died. I have learned that simple things like being hungry and overly thirsty were because of diabetes not because it was hot outside.

Id like to meet other kids to share their experiences and see if there are similarities. I have good days and bad days and it would be nice to meet other people who experience this too :(

Hey everyone!!!!

Christi Busch — Thu, 07 Jun 2012 13:45:43 GMT

Im Christi!!!!

I have been a diabetic since 1996!!!!

Im now taking Lantus, Novolog and Victoza and I recently lost ten pounds!!!!!!

Im prettttttyyyy excited about this website!!!!!

Hello Everyone ! Teamates :)

Aykut Ucakçı — Tue, 08 May 2012 17:05:41 GMT

Hello everyone from Turkey :) My name is Aykut Ucakçı.. I have tp 1 diabetics from 18 years and now i am 21 i am musician playing clarinet in restourant, bar and cafe. My blood analysis is high i will go hospital 3 days later :) I adjust live with diabet, diet life and i am try for low blood analysis i hope i see my blood analysis is 90-120.. thanks for reading everyone :)

8 year old son with T1 looking for a boy he can write to that is also T1

ejnwmom — Sat, 05 May 2012 02:14:52 GMT

My 8 year old son was diagnosed in April with Type 1 diabetes. He is looking for a pen pal who also has Type 1. He is the only one in his school and feels like he is the only one in this situation.

New family

Loryn — Tue, 01 May 2012 04:38:38 GMT

Hi! Our daughter was diagnosed Nov 2011 (Thanksgiving Day). Since then we have been blessed... We've discovered her strength and resolve, our family togetherness, and found that living with Diabetes is possible! She is 11 now and we've discovered some of the challenges, but thusfar have been able to manage well. So glad to find this site....look forward to chatting with all of you!