Forums

Forum Post: Re: Running with a cgm

DDrumminMan — Thu, 23 May 2013 06:34:00 GMT

I don't have a cgm but have been running with diabetes for 32 years. On days that I run I take less insulin (injection) before my last meal before the run, usually lunch. I test before I run. If I'm under 200 I'll have a snack of 20 - 30 carbs before I go out. I run 2.5 miles in around 30 mins. I test again when I get home and snack or not accordingly.

Works for me.

I also carry a cell phone and wear a medical alert necklace in case I run into problems. Haven't needed it so far (knocking on wood).

Forum Post: Re: At home personal training and nutrition education for people living with diabetes!

Gina — Thu, 23 May 2013 02:38:00 GMT

Hope this is a great service you are providing for people with diabetes! Sorry I don't live closer!

Forum Post: Re: Petition to Revise the Names of Type 1 & 2 Diabetes

Jamielperez — Wed, 22 May 2013 22:55:00 GMT

Hi James. Just saw your reply. I understand the definition of Diabetes very well and agree that, of course, T1&T2 are and always will be forms of D (along with other forms that actually have names). We are not petitioning to change that fact. We just want type classification names that mean something- that do some education in and of themselves- something the numbers 1&2 do not do. They will still be sister forms of D, but with names that will facilitate the education process- names upon which educational campaigns can be effective. Your example of Cancer is a perfect one- yes, all forms are still cancer, but I can't imagine how difficult it would be for each type to educate, let alone advocate for a cure if they were called Cancer Type 1, Cancer Type 2,.....Type 36, etc.

I appreciate your suggestion to learn more about my sons disease and its management. That is exactly what I have spent this past year doing 24/7. My entire life changed on a dime when he was diagnosed. I dropped every aspect other than taking care of my children and learning as much as I possibly could about this disease and its management. May I suggest that you actually read the petition we have created before you pass judgement on its merits or on my understanding of my son's disease. You ask me to give you a good reason to do this- please read the petition. You will see all of our good reasons. Then if you do not agree, I totally respect your opinion. Right now we have almost 3,800 signatures and the support of several esteemed individuals within the D world. I continue to be encouraged and i will continue to advocate for our children, while effectively understanding and managing my sons D every single day.

Forum Post: Re: Greetings fellow T1&2D comrades!!

jennagrant — Mon, 20 May 2013 15:34:00 GMT

Are you vegetarian? If not, the best friend of a person with diabetes and eating gluten-free is meat. Adds so much variety and nutrition to your meals.

You can still do rice and corn products. There are tons of Celiac friendly cookbooks, see what you can find.

And you probably know this already, but one product that often has wheat products in them are seasonings. Just read labels and you'll be okay.

That's cool that you live in CO. I grew up in Ft. Collins and went to school in Durango. Lived in Denver a few years too once I got out of school.

Forum Post: Re: New insulin nano gel developed

jennagrant — Mon, 20 May 2013 15:19:00 GMT

This is so cool Terry! I've always thought smart insulins were the way diabetes would be treated in the future. But they weren't working well enough yet. This technology sounds like it might be a step forward.

Thanks for sharing.

Forum Post: Re: Moving from Canada to ENGLAND

SarahB — Fri, 17 May 2013 18:17:00 GMT

Hi,

I moved from Canada to the UK back in the 90s. I lived there for a total of 5 years, I had a student visa and then a working-holiday visa. I never had to pay when I was using the NHS, the only time I did have to pay was when I went to a private doctor. I believe that if you are living there for a longer period of time, such as more than 6 months that you don't have to pay. I would check with the NHS, but in the mean time I found this that might be helpful: www.adviceguide.org.uk/.../nhs_charges_for_people_from_abroad.htm

Have a fab time in the UK, London is a wild place to live. :)

Sarah

Forum Post: Re: Ladies Crossfit

Gina — Fri, 17 May 2013 12:10:00 GMT

jenna,

I am thinking about getting the tallygear belt, have you see these? www.tallygear.com/index.php

Forum Post: Re: Annoying thing happened at work yesterday...

Eric — Fri, 17 May 2013 07:01:00 GMT

Not only am I a T1D, but I also have Celiac. This basically rules out just about any food oriented event that has not been specifically geared toward my dietary needs.

So, I thank the person for their gracious offer and tell them that I can't eat anything due to my T1D and Celiac condition. Most times they ask what they can do int he future to accommodate me and I just tell them not to bother, that I am all set and have no problem not eating anything. This usually works fine.

Ultimately, you just need to realize that this issue you have is all in your head and an opportunity to be a better person in realizing that it is just food and not a big deal. You are the source of your own happiness or misery in life and this comes from your perspective. be the example for your coworkers and children (if you have children). You don't NEED a stupid muffin, right? It is a temporary delight that will be non-existent once you finish eating it, anyway, except that it will have an effect on your body if you do eat it. Just smile and giggle inside at these poor folks that cannot control themselves and wait for your boss to come to you for help in the future. If you took this problem to a Buddhist monk, they would be all excited to share with you how this is a fantastic opportunity for you to overcome the trappings and suffering of your mind.

Cheers and love to you Allkindzacute!!!

Eric

Forum Post: Re: Cord Blood Banking

jennagrant — Thu, 16 May 2013 20:59:00 GMT

There are other posts on this site on the topic so search around a bit. Basic consensus is that it's better to put the $$ in a college fund for your child since no researchers have been successful at turning stem cells into actively producing insulin cells.

Congratulations on your new baby.

Forum Post: Yoga and Cgm/pump issues

Gina — Wed, 15 May 2013 16:56:00 GMT

JDRF is looking for information from people with T1D who practice yoga with a CGM and/or a pump.

Do you experience issues with temperature interfering with your insulin; sweat interfering with your BG readings; or movement displacing your equipment? Have you found solutions that work for you?

If you’d be willing to be part of an article exploring these issues, please send your experiences to: Talley Henning Brown Writer/Editor, JDRF thenning-brown@jdrf.org

Forum Post: Re: Why is it so hard to find a camp with a nurse? Type1nation and JDRF should start a campaign!

Red Maxwell — Tue, 14 May 2013 14:48:00 GMT

Hey Jodi-

The cool thing about NC is that there are a couple good diabetes camps that are held in state. My brother in law who has T1D has been an adult counselor at Camp Carolina Trails. It's held at YMCA Camp Hanes on 400 acres next to Hanging Rock State Park. But registration fills up fast. Our endocrinologist in Charlotte put together a day camp that we've attended - Camp Coqui. Not sure if that's still going on though. Thirdly, there's Camp Needles in the Pines that's put together by ECU. The link to that site is: www.ecu.edu/.../Camp-Needles.cfm

If you're willing to travel consider this:

A camp that we saved up for- and was totally worth it is Camp Clara Barton (for girls). Camp Joslin is the boys camp. Both are up in Massachusetts and are amazing programs.

Good luck

~ Red

Forum Post: Re: NEW DIABETIES ANDROID APP ....

James — Mon, 13 May 2013 17:21:00 GMT

Data entry needs to include all meds and "supplements", food, exercise, health issues, mood, hormone cycles, and "non-specifics". Data entry needs the ability to alter the time of the event. Therefore data may be entered from the past tense. Nobody needs to be entering the data during meetings, while driving, etc. That's one of my biggest complaints for the Dexcom event data and calibration data entry.

Forum Post: RE: I want a CGM that displays on a smart phone

James — Mon, 13 May 2013 17:13:00 GMT

It's been tested, in a research setting. For obvious reasons all the phone functions were disabled to prevent them from interfering with the CGM calculations, warnings and Insulin pump insulin delivery. . . But it shows that it is possible and will probably become common in the future. Depends on the research funding and results.

Forum Post: Re: Want to conceive but need to get A1C down

jennagrant — Mon, 13 May 2013 15:56:00 GMT

Don't worry about how your baby will be born. You're not even pregnant yet! =)

First step is to have your diabetes in as good of shape as possible. Sounds like your first pregnancy was healthy so there is no reason your second won't be. You can deal with pregancy and birth issues as they come up.

The goal of "lowering your A1c" is big and hard to get your arms around. What's worked best for me is to have a low target number while have few hypoglycemias as much as possible. Work with your doctor to find a target that's safe. Especially since you have a young child that you take care of.

When pregnant I aimed for 80 because non-diabetic women have blood sugars in the 60 - 80 range. In the years since I don't like taking the time to maintain that tight of control and I aim for 100 and rarely have lows.

Try this for a couple months and assess your numbers based on your A1c and the % of tests that are within your target range (I use +/- 20, so I like to see about 80% of my tests between 80 - 120).

Forum Post: Re: Embarassing Moments with Diabetes

Chad Hamman — Mon, 13 May 2013 07:01:00 GMT

I've had plenty of embarrassing moments with lows, but one of the worst wasn't even caused by a bad blood sugar. I had just started on a CGM and was still getting used to the alerts it sets off for highs, lows, weak signal...etc. I had taken my girlfriend out on a nice date and she decided to "reward" me. In the heat of the moment I took off the pump and didn't think anything of it. Two minutes later the damn thing starts incessantly beeping to the point I had to get up and deal with it. My girlfriend still didn't fully understand diabetes so she refused to do anything else until I treated myself for whatever was going on. It took twenty minutes for her to understand that the beeping was just from me being disconnected for too long and by that point the moment had passed and I was frustrated. Fortunately, a few months later she understands things a little better.

Forum Post: Re: VBAC w/ T1

KatherineW — Mon, 13 May 2013 04:02:00 GMT

Michelle, how's it going? I also want to VBAC the next time I get pregnant- hopefully in a few months when my A1C is better. I actually want to home birth, but I haven't talked to many people seriously about it to see if I will have the support to do it. But I at least want my A1C to be excellent so that I can have the confidence to insist that I go into labor on my own without an early induction (which to me means before 41 weeks!).

Please let me know if you are pregnant, or have had another baby yet, and your experience. I would also love an accountability partner if you are up for it! Thanks! Good luck and God bless!

Forum Post: Re: Need Participants for Online Diabetes Communities Research-$20 compensation

dhe — Sun, 05 May 2013 03:40:00 GMT

Thanks,Jenna! We do need more participants~

If anyone is interested in our study, please feel free to write email to me directly: danresearch@utexas.edu

Forum Post: Re: New pump user question.

Mtguy12 — Tue, 30 Apr 2013 19:26:00 GMT

I already do all that yeah, the screaming is coming from the usual meddling folks who think they know what it's like or that they could deal with it better because they've spent years watching you deal with it. As for the physician and his nurse the sad part is that they are who every other doctor in the area reference everyone to as it is the "diabetic center" =(

Forum Post: Re: Home again

jennagrant — Fri, 26 Apr 2013 19:49:00 GMT

So glad you're okay. That had to be really scary.

That's cool that you wanted to be a dietician. Diabetes gives you a great education in nutrition and how food is used in the body.

I'm really sorry about your diabetes diagnosis. Know that while it isn't something we would choose, it won't ruin your life. I've gone to college, traveled, worked different jobs, gotten married, and had a healthy child all while dealing with my diabetes.

Take care and let us know if you have questions or problems that come up.

-Jenna

Forum Post: Re: Sports

JSeltz — Fri, 26 Apr 2013 13:39:00 GMT

thanks! I do have a CGM, I just sometimes have difficulty with it staying in, so I rarely wear it. We think the high blood sugars were due to a virus that I had in my system, so fortunately my sugars are stable now.