General

Forum Post: Re: Restaurants having the nutritional Guideline

DDrumminMan — Sat, 25 May 2013 06:55:00 GMT

I thought it was the law that restaurants have to have this. I find that some do and some don't. More don't than do.

Last Saturday I was in Dallas and went to Jimmy John's sub shop. I asked the guy behind the counter if they had it. First he looked at me like I had 2 heads. He checked with the manager who told him it was online. No help as I have a dumb phone. finally he agreed to look it up for me online from the back room.

Once I was at 7-11 and asked for the nutritional info on a sugar free slurpee. The guy there had no clue.

Does anyone know if this really the law in all 50 states? I thought it was, but don't know.

Forum Post: Re: Petition to Revise the Names of Type 1 & 2 Diabetes

Jamielperez — Wed, 22 May 2013 22:55:00 GMT

Hi James. Just saw your reply. I understand the definition of Diabetes very well and agree that, of course, T1&T2 are and always will be forms of D (along with other forms that actually have names). We are not petitioning to change that fact. We just want type classification names that mean something- that do some education in and of themselves- something the numbers 1&2 do not do. They will still be sister forms of D, but with names that will facilitate the education process- names upon which educational campaigns can be effective. Your example of Cancer is a perfect one- yes, all forms are still cancer, but I can't imagine how difficult it would be for each type to educate, let alone advocate for a cure if they were called Cancer Type 1, Cancer Type 2,.....Type 36, etc.

I appreciate your suggestion to learn more about my sons disease and its management. That is exactly what I have spent this past year doing 24/7. My entire life changed on a dime when he was diagnosed. I dropped every aspect other than taking care of my children and learning as much as I possibly could about this disease and its management. May I suggest that you actually read the petition we have created before you pass judgement on its merits or on my understanding of my son's disease. You ask me to give you a good reason to do this- please read the petition. You will see all of our good reasons. Then if you do not agree, I totally respect your opinion. Right now we have almost 3,800 signatures and the support of several esteemed individuals within the D world. I continue to be encouraged and i will continue to advocate for our children, while effectively understanding and managing my sons D every single day.

Forum Post: Re: New insulin nano gel developed

jennagrant — Mon, 20 May 2013 15:19:00 GMT

This is so cool Terry! I've always thought smart insulins were the way diabetes would be treated in the future. But they weren't working well enough yet. This technology sounds like it might be a step forward.

Thanks for sharing.

Forum Post: Re: Moving from Canada to ENGLAND

SarahB — Fri, 17 May 2013 18:17:00 GMT

Hi,

I moved from Canada to the UK back in the 90s. I lived there for a total of 5 years, I had a student visa and then a working-holiday visa. I never had to pay when I was using the NHS, the only time I did have to pay was when I went to a private doctor. I believe that if you are living there for a longer period of time, such as more than 6 months that you don't have to pay. I would check with the NHS, but in the mean time I found this that might be helpful: www.adviceguide.org.uk/.../nhs_charges_for_people_from_abroad.htm

Have a fab time in the UK, London is a wild place to live. :)

Sarah

Forum Post: Re: Annoying thing happened at work yesterday...

Eric — Fri, 17 May 2013 07:01:00 GMT

Not only am I a T1D, but I also have Celiac. This basically rules out just about any food oriented event that has not been specifically geared toward my dietary needs.

So, I thank the person for their gracious offer and tell them that I can't eat anything due to my T1D and Celiac condition. Most times they ask what they can do int he future to accommodate me and I just tell them not to bother, that I am all set and have no problem not eating anything. This usually works fine.

Ultimately, you just need to realize that this issue you have is all in your head and an opportunity to be a better person in realizing that it is just food and not a big deal. You are the source of your own happiness or misery in life and this comes from your perspective. be the example for your coworkers and children (if you have children). You don't NEED a stupid muffin, right? It is a temporary delight that will be non-existent once you finish eating it, anyway, except that it will have an effect on your body if you do eat it. Just smile and giggle inside at these poor folks that cannot control themselves and wait for your boss to come to you for help in the future. If you took this problem to a Buddhist monk, they would be all excited to share with you how this is a fantastic opportunity for you to overcome the trappings and suffering of your mind.

Cheers and love to you Allkindzacute!!!

Eric

Forum Post: Re: Why is it so hard to find a camp with a nurse? Type1nation and JDRF should start a campaign!

Red Maxwell — Tue, 14 May 2013 14:48:00 GMT

Hey Jodi-

The cool thing about NC is that there are a couple good diabetes camps that are held in state. My brother in law who has T1D has been an adult counselor at Camp Carolina Trails. It's held at YMCA Camp Hanes on 400 acres next to Hanging Rock State Park. But registration fills up fast. Our endocrinologist in Charlotte put together a day camp that we've attended - Camp Coqui. Not sure if that's still going on though. Thirdly, there's Camp Needles in the Pines that's put together by ECU. The link to that site is: www.ecu.edu/.../Camp-Needles.cfm

If you're willing to travel consider this:

A camp that we saved up for- and was totally worth it is Camp Clara Barton (for girls). Camp Joslin is the boys camp. Both are up in Massachusetts and are amazing programs.

Good luck

~ Red

Forum Post: Re: NEW DIABETIES ANDROID APP ....

James — Mon, 13 May 2013 17:21:00 GMT

Data entry needs to include all meds and "supplements", food, exercise, health issues, mood, hormone cycles, and "non-specifics". Data entry needs the ability to alter the time of the event. Therefore data may be entered from the past tense. Nobody needs to be entering the data during meetings, while driving, etc. That's one of my biggest complaints for the Dexcom event data and calibration data entry.

Forum Post: RE: I want a CGM that displays on a smart phone

James — Mon, 13 May 2013 17:13:00 GMT

It's been tested, in a research setting. For obvious reasons all the phone functions were disabled to prevent them from interfering with the CGM calculations, warnings and Insulin pump insulin delivery. . . But it shows that it is possible and will probably become common in the future. Depends on the research funding and results.

Forum Post: Re: Embarassing Moments with Diabetes

Chad Hamman — Mon, 13 May 2013 07:01:00 GMT

I've had plenty of embarrassing moments with lows, but one of the worst wasn't even caused by a bad blood sugar. I had just started on a CGM and was still getting used to the alerts it sets off for highs, lows, weak signal...etc. I had taken my girlfriend out on a nice date and she decided to "reward" me. In the heat of the moment I took off the pump and didn't think anything of it. Two minutes later the damn thing starts incessantly beeping to the point I had to get up and deal with it. My girlfriend still didn't fully understand diabetes so she refused to do anything else until I treated myself for whatever was going on. It took twenty minutes for her to understand that the beeping was just from me being disconnected for too long and by that point the moment had passed and I was frustrated. Fortunately, a few months later she understands things a little better.

Forum Post: Re: Need Participants for Online Diabetes Communities Research-$20 compensation

dhe — Sun, 05 May 2013 03:40:00 GMT

Thanks,Jenna! We do need more participants~

If anyone is interested in our study, please feel free to write email to me directly: danresearch@utexas.edu

Forum Post: Re: School Nurse Issues!

T1Jedi — Tue, 23 Apr 2013 12:44:00 GMT

As a child I learned that the only person capable of managing my diabetes was me. All too often other people would tell me "you need to control your sugar better". What did they know? Only what they heard. Not as a parent, but as a child I can say I understand the frustration and anxiety Jocelyn is going through. So here is my humble opinion. Your child is being abused at school. You are her first line of defense. Get in there and take names and kick ******. The principle is the primary responsible party on campus. Do not give in to platitudes like "we are only looking after the...." as it is mindless blah blah blah so they don't have to change what they are doing. Jocelyn does not have to see the nurse for anything. If she is competent in checking her blood and determining sliding scale dosages for meals then support her right to do so.

I fought this battle alone. My parents were working countless hours to help defer the brutally high cost of having 2 children with T1. They told me I could not bring needles to school unless they were kept in the nurses office. I ignored them. Never got in trouble for it but I think it was because they feared my father. If your child was being physically abused you would be locking and loading and going to war. Psychological abuse can do more damage than physical. Go get em mom!

Forum Post: Re: Recently diagnosed Type 1...struggling...any advice/tips?

T1Jedi — Tue, 23 Apr 2013 04:24:00 GMT

I was diagnosed at age 8. The doctor came into the cave where we lived(not really, it was a hospital room) and a nurse followed him in. She had a potato and a GLASS syringe with a gynormous needle on it. I asked "what's this?" in 8 yearoldese. He said "you're gonna learn to give yourself shots". I said nuh uh or some such. He said

"Then you are going to DIE!" and walked out of the room. I found out later he had spent the last 72 hours checking on me constantly. I was comatose during that time.The nurse started to leave too but clever little fellow I was I said "hold on now" or some such. You get the idea. That was 1967.

Yes there is a moral to the story. I ran the 5k Mighty Mud Dash in Houston, Tx 2 weeks ago. Do the math. I got this far with a simple mindset. "Never give up." "Stay the Course" or any other way of keeping yourself committed to doing what you have to do. There will be problems, and disappointments, but never forget hope. Last but not least is the key to success. Positive Mental Attitude. PMA for short.

Forum Post: Re: persisitently high at night

bluelemur — Fri, 19 Apr 2013 04:16:00 GMT

I have some suggestions, I say after 3 hours of his bedtime, wake him up and test his blood, so you can see where the trend is starting and stop it, If you don't have it, I recommend Lantus, but it stops weight loss, might promote gainage of weight, just an idea, hope it works out for you, bests of luck Christine

Forum Post: Re: Neuropathy Medicines

kath — Wed, 17 Apr 2013 19:12:00 GMT

Rich,

I've been on gaba for since 12.25.12. I have had about 50% relief. I don't know if it's realistic to get closer to 100% relief. I have an appt with my endo next week and plan to explore that. Since you've been on gaba about the same amount of time, what has your experience been?

FYI, in addition to gaba I starting taking ALA (alpha lipoic acid) 200 mg 3x/day in early March. Some research claims it can help.

Just curious, were you on any neuropathy meds prior to gaba? It sounds like you probably were not.

Kath

Forum Post: Re: Hello - please advise - Glucagon with Dairy Allergy?

Joe — Thu, 11 Apr 2013 21:56:00 GMT

I've never needed it in 30+ years, but it could be a life saver. First off, there is no lactose in glucagon, it's an excipient, meaning it's part of the formulation and not considered part of the medicine. 2nd, it's injectable which is a huge difference when compared to lactose ingested as in drinking a glass of milk. Also, it's everywhere including IV's in ringers solution and probably many other injectable medicines/vaccines.

there isn't much public information regarding injectable lactose and allergic reactions. It almost sounds like there's no relationship but I didn't do a real search. I found a list of EMEA comments on required excipient labeling for injectable lactose as follows: "SPC proposal: Patients with rare hereditary problems of galactose intolerance, the Lapp lactase deficiency or glucose-galactose malabsorption should not take this medicine".

Maybe you could talk it over with your allergist and figure out a way to do a tolerance test, so it's at least in a controlled environment instead of in an actual emergency. I could see this as a real problem during an ER visit for DKA where they might start an IV.

cheers and good luck. if you find something out please update us, my son has a milk allergy too.

Forum Post: RE: is my diabetes gone ?! :)

Irada — Thu, 11 Apr 2013 04:56:00 GMT

Hello,friends.

I'm so sorry for being away from this topic for such a long time cuz i've been busy with my graduation issues. Bit by bit i'll reply to all comments. Sorry again.

Love,

Irada

Forum Post: Re: It's hard to be a parent of a child with T1D!

John — Wed, 10 Apr 2013 19:50:00 GMT

Done...

Forum Post: Re: OmniPod

Baseplayer84 — Wed, 03 Apr 2013 23:07:00 GMT

I found that Medtronics pumps are the best way to go. They are the most popular, i believe, and they are on the verge of the newest and innovative pump techonology out there. Be careful of the wireless pumps because of the fact you may misplace or forget them.

Forum Post: Re: Person First Language

jennagrant — Tue, 02 Apr 2013 16:29:00 GMT

I think you're great too Scott!

We all deal with this issue in different ways. When I was 15 I insisted on being a "person with diabetes" now that I'm 40 I really don't care what people call me. I'm just living my life. =)

Take care.

Forum Post: Re: 29 Most Annoying Things to Say to People with Diabetes

Scott Kienzle — Tue, 02 Apr 2013 02:28:00 GMT

#16 is basically my trigger, i had a friend get concerned because i was eating oreos, as a joke i took my BS, 104 mg/dL. Next i took his, arguing that i took better care of myself than he ever could, he came out at 131 mg/dL, i freaked out and said he needed to get to the doctor asap. He got diagnosed with type 2 a month later... My how the mighty have fallen....