Basic Stuff - Recent Threads

Need Participants for Online Diabetes Communities Research-$20 compensation

dhe — Wed, 24 Apr 2013 04:16:24 GMT

We are a group of researchers in the School of Information at the University of Texas at Austin. We are currently recruiting participants for an interview study intending to gain a better understanding of how diabetes online communities are being used for health purposes. In the interviews, we are expected to gain your experience about how you use this diabetes group, how you interact with peers on the group, and your overall experience with it. No personal information such as your health condition will be asked in the interview.

If you are an active user of any online diabetes communities, please contact us at danresearch@utexas.edu. We will compensate your time with a $20 Amazon gift card. The study has been approved by the IRB at UT-Austin and the IRB number is 2011-12-0036

I want a CGM that displays on a smart phone

Terry — Fri, 19 Apr 2013 19:15:42 GMT

Does anyone know if there are plans in the works to have a Dexcom display on a smart phone? My daughter never remembers to carry the receiver.

She hates having to carry it but she won't go anywhere without her phone.

persisitently high at night

Weide — Wed, 17 Apr 2013 14:06:54 GMT

need help to this persistent high sugar at night.

my son is turning six this month. His sugar at night shoot up to over 16 every night regardless how much insulin we gave him. He is taking NPH during the day and at night, the insulin works during the day. His sugar is good at lunch and afternoon. We are not sure what caused this consistent high.

Anyone experienced somehting like that? what should we do?

thanks

Christine

NEW DIABETIES ANDROID APP ....

Midnite — Fri, 12 Apr 2013 19:19:18 GMT

I am interested in creating an all inclusive all around android based ( maybe Iphone after the android app is developed ) Diabetes app ... I am posting this to get your feedback as there are a lot of apps currently available but they are not all that great and not ALL inclusive ... by this I mean there are apps that allow you to look up carbs in foods ( etc ) and log apps and other apps what I am posting this forum message about is to BRAIN STORM all of the best ideas into this one APP and make it something to really help and assist with daily living. IF you have an idea or some input as to what you would like to see in the app please post a message and let me know or if you know anyone that does app development and or programming please put them in touch with me as well. I hope to have create this app to benefit all and was thinking to charge maybe - 1$ or 2$ and donate all income from it to JDRF and The American Diabetes association ... Please post your input ... I am Very interested and would like to make this a COMPLETE APP

Embarassing Moments with Diabetes

jennagrant — Fri, 12 Apr 2013 15:12:55 GMT

Thought this post on Diabetes Daily was great. http://www.diabetesdaily.com/voices/2013/04/embarrassing-moments-with-diabetes/?utm_source=MailingList&utm_medium=email&utm_campaign=2013-04-10+Most+Embarrassing

I've had many embarassing, and some downright comical, moment from diabetes. Of course my family and friends remember them all and tease me about them. =)

It's hard to be a parent of a child with T1D!

John — Thu, 04 Apr 2013 15:53:43 GMT

Hi folks, I'm a grad student at the University of Pennsylvania and a T1 diagnosed when I was 22 (so I was able to really enjoy a lot of halloweens:)

I'm working on a project with some other students trying to understand what kinds of services parents of children with diabetes might need to help their child achieve better/easier care. It's hard being diabetic and I'm suspicious that it's even harder to be the parent of a child with diabetes. It's really important to me to understand the parent's perspective (which I don't have) so I'm hoping some of you might fill out this survey, it's under 20 questions!

I also participated in a clinical trial for type 1 diabetes last year at Yeshiva University in NYC, involving the artificial pancreas project, if you have any questions feel free to message me!

There's a comment space at the end if you have some extra thoughts, or if you want to learn more about our research feel free to message me! Thanks in advance:)

The google survey --->https://docs.google.com/forms/d/1MuqH59QVUbPIOPddMQl6K78jgV__L14TGeanjzNAyTA/viewform

Petition to Revise the Names of Type 1 & 2 Diabetes

Jamielperez — Sat, 30 Mar 2013 23:25:11 GMT

Hi everyone. My 13yr old son was diagnosed with T1 almost 1 year ago. I have learned a lot from reading posts here, but I have not posted myself. Today I am doing so to share something that I think is very exciting. A fellow T1 mom, Jeanette Collier, and I have just filed a petition to revise the names of both Type 1 and Type 2 Diabetes to more accurately reflect the nature of each disease. We tried to do this in a way that benefits both the T1 and T2 communities. We sincerely hope that we have accomplished our goal to make this petition benefit all of us. We are very excited that Dr. Camillo Ricordi of the DRI has signed our petition and is promoting it on his FB page! We are 48hrs into this and have over 400 signatures. We just might be on the way to making change happen!

Please click on the link below to view our petition on change.org. In addition to adding your signature, please consider promoting our petition to all of your family and friends. You can send a link via email and/or you can post a link on FB, in other on-line communities, within a blog, etc.

Thank you for your consideration!

Jamie.

http://www.change.org/petitions/revise-names-of-type-1-2-diabetes-to-reflect-the-nature-of-each-disease

29 Most Annoying Things to Say to People with Diabetes

jennagrant — Mon, 25 Mar 2013 18:35:47 GMT

Ginger Vieira is one of my favorite diabetes writers. Here's a recent one.

http://www.diabetesdaily.com/voices/2013/03/top-29-most-annoying-things-to-say-to-people-with-diabetes/

OmniPod

JimDan — Mon, 25 Mar 2013 16:07:56 GMT

I am testing out several pumps before I make the big decision. I have tried the t:slim with good results and I will be starting a trial with the Animas Ping tomorrow. Then I will test the OmniPod. I would appreciate any feedback, positive or negative, about those pumps. I am especially interested in the OmniPod since it doesn't have the tubing, which I do find to be a pain. I do use a Dexcom cgm and am concerned that I will be having too many gizmos in my pockets. Thanks for any feedback!

Person First Language

LoLoG — Fri, 15 Mar 2013 03:56:27 GMT

I am currently studying to become a special education teacher. One topic that always comes up in all my education classes is the need for person first language when it comes to people with disabilities. The concept is to put the person first, the disability second. A person shouldn't be defined by their disability, instead, they should be defined as a person.

For example: Instead of saying "the Autistic child", it's better to say, "the child with Autism". Or, "the student with a learning disability", instead of "The learning disabled (or handicapped) student". While to some it may seem trivial, I think that it really does make a difference in our perception of a person. Just think about the "R" word that is becoming obsolete - our language that we use is important!

It wasn't until I was reading a passage in a book called "Reflections from a Different Journey: What Adults with Disabilities Wish Their Parents Knew", when one of the authors spoke about their Type 1 Diabetes as being a disability that I really made the connection between having Type 1 and this person first language. While I do not see myself as having a disability, I do understand why others may.

This has all led me to think a lot about how I use the term "Diabetic". I really do think I like being "a person with type 1 diabetes" opposed to "a type 1 diabetic". I have started to try to stop saying it, and instead say I am a person with Type 1 diabetes.

I'm curious about what other people think of this person first language when it comes to our Type 1!? Should we be included in this person first language?

(And in case anyone is wondering, I highly recommend the book I mention! It was a great, quick read that is really insightful into a wide range of different abilities)

DUI and blood alcohol concentration

Adi — Thu, 14 Mar 2013 17:45:19 GMT

My Type 1 diabetic husband has been charged with a DUI. He had a few beers at a BBQ and drove home. He should not have driven and takes full responsibility for his actions. However, his blood test came back at a 0.168, which is extremely high considering the amount he drank that evening. Plus, 3 hours after the blood test, he blew a breathilizer of .002. Charts would indicate it would take more than a couple of hours for his BAC to drop that much. Has anyone had experience as a Diabetic with having a high BAC reading?

TYPE 1 athletics brand (hopefully!)

Scott Kienzle — Sat, 09 Mar 2013 20:05:30 GMT

Hey guys!

I have been thinking about starting a clothing line named "Type 1 Athletics" it would be a regular athletic clothing line with a focus on technology and equipment implements in athletic clothing (shirts with inside pockets built for monitors or pens that could double for devices like GPS/cell phones and other technology creature comfort devices. The cool part is that it would raise awareness of our disease's name (how many times do you guys have to explain what type 1 is? For me its enough to get agitated lol) and the company would donate a percentage of each item sold, to the JDRF for research and especially for grants aimed towards educational programs and camps for children and youth-peers.

I am still in the babay steps of making this company, getting my copyrights filed and starting my fundraising organization "CLIMB TO L1VE" but i wanted to start offering you guys t-shirts for a cost of roughly $7 per shirt. This charge will be just a cover of the cost of my first bulk order from customink.com which i will be making once i have at least 20-30 people who are interested in purchasing a shirt for around $5-10. I will be setting up an Etsy.com account and paypal account for these transactions and will let you guys know when everything is ready for me to accept any payment and to ship every order. If my tax return is large enough however, i will be able to offer these shirts to you guys for free! So cross your fingers! Please post if you have any interest in a shirt and i will get in contact with you more directly once all the stones are in place as they say!

Here is a basic blue print of the shirt (still getting my copyright for it, takes annoyingly long!) The front is the electron configurations of hydrogen, oxygen,carbon, nitrogen and sulfur. These are the 5 basic elements of all American made insulin (some foreign companies do not use sulfur) and also include the 3 elements for the compound Glucose! On the back is the name of the company, HOPEFULLY, to come down the road. Thanks for reading and as i said respond if you're interested!

Here is the shirt design:

Please contact me at t1climb2live@yahoo.com if you have any e-mails or suggestions you would like to share!

-Scott

Just Be Happy!

Jess — Sat, 09 Mar 2013 12:18:38 GMT

Hey Guys:)

We all have a choice of how we want to live our lives. We can choose who we surround ourselves with, what mood we want to be in, what food we want to eat, how much water we drink, etc. When I hear about people who have diabetes, it makes me sad to hear them say "i hate diabetes' "I would do anything to get rid of it". But in reality there is a reason that all of us have this condition, it was ment to be. I could not of said "I do not want that condition!" and live happily ever after. So my point is lets all together welcome our condition(s) with open arms and a open mind to help us manage a well as we can! It is possible to have an A1C in the 5% range!

Just my thoughts,

xoxo Jess

My prayer during hypoglycemic episodes, please add your own!

Scott Kienzle — Fri, 08 Mar 2013 05:49:30 GMT

Hey guys! I have noticed a lot of people on our site have signatures that are scripture, i wanted to make a thread for good scripture to be used by those who are not big bible readers. Please share your own prayers so we can provide support to more members and help them live through the hardest times and most difficult challenges.

My personal diabetic prayer and "serenity prayer" for hypoglycemic episodes:

King James edition*

II Corinthians 12:10-

Therefore i take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when i am weak, then am i strong.

^This prayer has aided me more than anything in my struggles as a t1 diabetic heart attack survivor.

Please add more to this thread so that more tools can be found on this site :)

Amazing History of Diabetes, Compliments of Richard

jennagrant — Wed, 27 Feb 2013 22:12:30 GMT

Richard- I stole this from you, but you hadn't posted it on TypeOneNation and it is incredible. I hope you don't mind.

Below is a preview of the history and photos on this link. Slides 12 and 13 are humbling. Thank God for modern diabetes treatment.

http://www.diabeticconnect.com/slideshows/48-history-of-diabetes?utm_source=FB&utm_medium=Social&utm_campaign=History%2Bof%2BDiabetes#11

Awakening from Keto-acidosis

The scientists went to a hospital ward with diabetic children, most of them comatose and dying from diabetic keto-acidosis. This is known as one of medicine's most incredible moments. Imagine a room full of parents sitting at the bedside waiting for the inevitable death of their child. The scientists went from bed-to-bed and injected the children with the new purified extract - insulin. As they began to inject the last comatose child, the first child injected began to awaken. Then one by one, all the children awoke from their diabetic comas. A room of death and gloom, became a place of joy and hope. Photo Credits- Library and Archives Canada

http://www.diabeticconnect.com/slideshows/48-history-of-diabetes?utm_source=FB&utm_medium=Social&utm_campaign=History%2Bof%2BDiabetes#11

I don't know

Stephanie — Fri, 22 Feb 2013 10:54:11 GMT

Hello,

So diagnosed a little under two years ago, I still consider myself new to this 'game.' I was diagnosed March of my senior year of High School. (way to go out with a bang right?) And at first I was the best little diabetic ever! 3 months to the day after I was diagnosed I got my insulin pump because I was going to college in the fall and we all agreed it would be the best thing for me to do. My first a1C was perfect. And then something happened. About midway threw september of my Freshman year I just... stopped. I didn't always check my blood sugar. That was the start. I bolused only for the food. And then I stopped even doing that all of the time. After my next A1c i knew i needed to get back on track. And I tried but then it went up again. During this I had switched from a pediatric hospital and doctors to the 'real world doctors.' I have been trying so hard to get back on track because I know how horrible this is for me. I even have asked people to help keep me acountable but sometimes I catch myself lying to their face about the fact if I bolus or not. I ask my doctor for advice and all he says is do better. I tried counseling yet all they said is 'do better' ' you just have to do it' I'm scared. I don't know what to do or where to turn. I feel like my world is falling apart and I can't seem to catch all the peices.

Has anyone else fallen off the wagon? How did you get back on? because I am lost...

What's The Deal?!

ununderstandable — Wed, 20 Feb 2013 04:34:45 GMT

Hello! I am a T1D,diagnosed summer 2012. I do not understand what the deal is. An unfavored disease just barged into my life. When I was diagnosed my blood sugar was off the charts. The stress is hard to get thru,and I would not mind some positivity. I always tell try to tell myself "stay strong, you're doin' great!" but sometimes the fact is that it is impossible...I feel like I am constantly trying to hold the world on my shoulders. Although the fact is that it gives you rights.Dr. Sholls,CANDY(My favorite!),and to be able to feel like you can try to forget about it ...please reply. -ununderstandable

CRRAAZZYYY metabolism and energy absorption rate calculations!

Scott Kienzle — Sun, 17 Feb 2013 09:33:46 GMT

Hey guys, i have recently been working on metabolism and energy as my variables to control, by doing this i have locked in my personal numbers, yours may vary from mine if you try to recreate these tests.

SOOO my theory began at my diagnosis, i took losing my pancreas as a challenge to out-perform the human body and achieve better metabolism control and steadier energy absorption rates than a standard human through extremely context sensitive calculations and a very disciplined daily regiment.

My first step was to recognize my diminishing returns number range (the number range where insulin resistance increased dramatically and carbs raised my blood glucose at lower speed due to slowed metabolism) I found this number to be between 171 and 180 mg/dL, about 1.6 times the energy reserve of a top level athlete. Next i had to begin lowering my insulin resistance by bringing my body fat % to below 9% and eating 80 grams of carbs a day max (this took about 2 months and resulted in a dosage of only 8 lantus units a day with a 1 unit to 30 carbs ratio for short acting)

By lowering my insulin numbers i was able to slow the rate at which my cells absorbed blood glucose (or as i call it, instant energy, meaning energy that is available without any digestion of food, fat or muscle). By mixing this incredibly slow energy consumption with an "instant energy" reserve that was 1.6 times the amount provided to a standard human, i began achieving things like running for miles without ever feeling tired, ending 6 mile runs at 155 mg/dL with more than enough energy to keep running for hours before feeling a hint of physical exhaustion.

I now can operate for 30 hours without any sleep on only 1,200 calories due to the energy absorption rate and increased instant energy reserve. This helps for endurance challenges like mountain climbing/trekking!

I can also use the "adverse effect" number range to get extreme boosts of instant energy for improved speed and agility. I accomplish this by boosting my blood glucose up to 195 (my max mg/dL before exercise adversely affects blood sugar by raising it instead of lowering it) and switching to a ratio of 1 units of short acting insulin to every 50 carbs. The reason for the carb ratio increase is that i only get these carbs from wheat bread which is naturally rich in niacin, thiamine and riboflavin, all of which dramatically increase metabolism. This ratio only works while doing strength activities like sprints, lifting weights or manual labor but makes you into a super human with a gigantic instant energy reserve and very high rate of absorption of energy (metabolism) to avoid exhaustion from strenuous activity. Between these two variables you can use large amounts of blood glucose in short periods of time for bursts of extreme strength. My first time trying this theory, i knocked 45 seconds off my mile time (down to 4:50! :D) without feeling any difference in exhaustion compared to previous times!

These are cool theories that have to be approached with extreme caution and require a lot of discipline to practice safely but i wanted to share them here because they are an example of how diabetes always pushes you to be better and try harder. Also, i know you guys actually care while normal people don't get what the heck i'm talking about lol

Also here is me on top of a 10k peak that i climbed 3 days ago at Lake Tahoe Nevada! Of course rocking the blue bandana for all diabetics :)

what spikes your sugar?

Bri — Mon, 11 Feb 2013 19:30:35 GMT

hey guys,

what foods really spike your sugar, even though you've given insulin for it?

I've posted about this before, but I need a lot more responses. I'm doing a research project for a class and am looking for some sort of correlation between foods that make our sugars skyrocket.

I'd really appreciate your guys' help!

-Bri

Type 1 Diabetes and The Flu

Gina — Wed, 06 Feb 2013 20:14:21 GMT

Have you guys gotten a flu shot? Do you know how to prevent getting the flu? Do you know what kind of treatments you should seek if you do get infected with the flu? These are questions that are really important and you should address them especially because you have diabetes or care for a loved one.

JDRF has put up some great resource links that you should check out to have some of these questions answered.

CDC Flu Information for People with Diabetes

This page from the U.S. Centers for Disease Control and Prevention (CDC) is a comprehensive resource for people with diabetes seeking to learn about the flu. It contains information about how diabetes responds to the flu, what to do if you're sick, and when to seek medical care.

Flu.gov

The U.S. Department of Health and Human Services (HHS) maintains this site as a central resource for all flu information. It contains updated information about flu signs and symptoms, prevention and treatment, and people with specific health conditions. It also offers the latest news on the flu pandemic, as well as a flu shot locator to help you find a location near you for the seasonal flu vaccine.

CDC Seasonal Flu Information

The CDC offers a comprehensive site for information about seasonal flu. The site includes basic facts as well as details about vaccination, signs and symptoms, and treatment.

NIAID Flu Information

The National Institute of Allergy and Infectious Diseases (NIAID) offers this resource for information about the flu from a scientific perspective. It provides details about the latest research and diagnostic progress for preventing and treating the flu, including updates on vaccine clinical trials.

Source: http://www.jdrf.org/index.cfm?page_id=112663

is my diabetes gone ?! :)

Irada — Wed, 30 Jan 2013 07:03:55 GMT

Hello, friends.

I'd like to share with you the issue of mine which is really dilemma and a big question for me. Hope for your feedback on it.

So, I’m diabetes since 2006 .I was 17 when I firstly diagnosed with T1D and now I’m 23. First 2 years of my life as diabetic was like a hell for me with my highs, highs and then scary lows. No matter how I was controlling my diabetes I couldn't find that golden mid of my blood sugar. On the other hand, I had tons of problems with insulin choice which actually my doctor prescribed for me. I injected Actrapid for 6 times as a short acting insulin before meals (after 2 hours of meal as usual my blood sugar was high than target and I had to inject 2-3 units for correction almost a year) and Insulatard 2 times (in mornings and before sleep in the evenings) in a day as basal insulin. But after such kind of doses of insulin my A1C was 10 and even more. I was depressed and didn’t know what to do, cause my doctor also was shocked with it.

Then I decided to become ” a doctor for myself “. Without talking and discussing with my doctor, I changed my insulin types and began to inject lantus as a long acting and novorapid as short acting one according to my carbohydrate amount in the meals. Gradually my body began to react to it and my blood sugar lowered (I never used pumps since I’m diabetic).

Now it’s almost 2 years that I’m using lantus and novorapid. But the matter is: I actually don’t use novorapid regularly. I mean, I use it as 2-3 units, once or twice in a week when I eat a big slice of cake or something like that and last time when I checked my A1C it was 4.3. It means, my body regulates the blood sugar based only on the lanstus (I inject 26 units per day) which I inject once in a day. In the mornings I sometimes check my BS and it’s surprisingly 81-85 range even if ate too much the previous night before sleep without using novorapid.

I’m really concerned what it is, because it’s not normal for T1D person without using appropriate doses of insulin as I understand. Is it only lantus that so excellent controls my blood sugar or my diabetes “gone” ? :)

All your comments are highly appreciated.

Bests,

Irada

Glucerna or ExtendBar (Other)?

Adam Rudick — Fri, 25 Jan 2013 05:11:34 GMT

I have used both Glucerna (drink and bar) and ExtendBar. Both have done some good things, but I get the feeling ExtendBar did more for me, being an athlete and being active a lot. What do you guys do? Which do you find helps you the most, if at any? They both taste pretty delicious to me.

Adam

Team Sky's Geraint Thomas takes charge of the Tour Down Under

Anonymous — Thu, 24 Jan 2013 09:05:01 GMT

Team Sky's Geraint Thomas took the lead of the Tour DownWholesale New Era Hats Under with a dramatic win on stage two to Rostrevor near Adelaide.

The Welshman, part of Great Britain's gold medal winning team pursuit lineups at the last two Olympics, made a bold break on the daunting Corkscrew Hill climb and was rewarded with victory in a sprint finish.

"It was a good day. I felt good from the start," said Thomas. "The boys looked after me today and worked well for me all day, and yesterday. I've worked hard all the winter and since the track47brand Snapback Hats all I've been thinking about is the road.

"You know, this year that's what kept me racing after the Games, like after Beijing I was out having a lash for a few months but this time I was straight back on the road thinking about this year."

Thomas avoided a late pile-up, which took down the world champion, Philippe Gilbert, and edged out Javier Moreno for the stage win, with Ben Hermans third for RadioShack. The same trio occupySnapback Hats On Sale the podium positions in the general classification, with Thomas holding a five-second lead.

7 year old girl dies from undiagnosed type 1

Terry — Thu, 10 Jan 2013 02:21:07 GMT

This is so sad. One has to wonder how many times her disease was missed.

http://avon-oh.patch.com/articles/aliyah-jean-ramsey-7-student-at-avon-east-elementary

I know we would have discovered my daughter's type 1 two months earlier if she had been required to have a blood test or urine test when when her vision started to decline. Testing for type one should be routine for kids that need corrective lenses. After she was on insulin her vision went back to normal and she no longer needed glasses.

What was your blood sugar when you were diagnosed?

Abby Pepper — Tue, 08 Jan 2013 00:59:41 GMT

Just a survey question :) Mine was 568.