Type 1 - Recent Threads

Type 1 people who loves workout

laimike — Thu, 30 May 2013 22:19:10 GMT

HI, guys, I'm a student from Pasadena, California. I have a project designing a product for type 1 who loves to workout, so I'm looking for someone to interview (Los Angeles area). Please pm me as soon as possible. Thanks!

New insulin nano gel developed

Terry — Fri, 17 May 2013 17:32:52 GMT

http://www.medicalnewstoday.com/articles/260664.php

The scientists claim the material adjusts to the needs of the body and can provide long term results.

Why is it so hard to find a camp with a nurse? Type1nation and JDRF should start a campaign!

jodi1234 — Fri, 03 May 2013 12:23:27 GMT

I have recently moved from New Jersey and there was a great camp there and I don't mind sending a shout out to Camp Riverbend in Warren NJ!! We love you and miss you!! They had a nurse there that was WONDERFUL!!! She took care of so many children and had at least 2 or 3 Type 1 diabetics at one time and never blinked taking care of them. This was an everyday outdoorsy camp, complete with ropes course, pools, archery, you name it. She was wonderful - my daughter was so well taken care I felt like she was so safe there, when I got my new job in NC and the company relocated me here I was saddest to leave because I knew I had to leave the camp.

I got here and not one camp has a nurse?!?! Not one! The diabetes camps are only 2 weeks maximum, most are not local and are sleepaway. My daughter is not ready for that and even if she was, what do I do for the rest of the summer? I am forced to send her to a day camp where I have to pay for a nursing student every day an hour to be there over lunch to give her her shot because she is not yet ready for a pump.

I think the Type 1 diabetes nation and JDRF should start a campaign to get nurses into camps for children not only for Type 1 diabetes but for ALL conditions. I mean so much can happen at camp and parents are ok to leave it to untrained counselors to decide if a kid needs more help or not?

If there is anyone in North Carolina who wants to start an outdoor day camp for Type 1 diabetics in the Triangle area please let me know, I will help! With all the medical facilities around, I think we will get tons of sponsorship and lots of support! How about it JDRF? What do you think?

Hello - please advise - Glucagon with Dairy Allergy?

jtolpin — Thu, 11 Apr 2013 19:18:16 GMT

Hi! New to the group, but not to T1D or Food Allergies (or CD, or MS, or Graves...)

12 yr old daughter with Multiple FA's from Day 1 DX'ed with T1D 5 yrs ago, Dx'ed with CD (confirmed via endo)... A mom with a child with T1D and FAs was sent to me, via forums.... and asked what we do, given a dairy allergy....

I said - there's Lactose in Glucagon? I hadnt read it... and no, we're not lax with things, we just missed it entirely.... Is daughter allergic to milk? Oh yes. 3 licks of a popsicle/creamscle caused full hives. She avoids 100% of milk, egg, wheat (CD), nuts, et al.... Limited diet, VERY healthy... cept for a non-working pancreas :)

I digress. Anyhow - We used glucagon once or twice in last 5 yrs, had no reaction, afaik. Is there an alternative to Glucagon that we should be looking at?

Thanks so much!

Jason

Talk Type 1 - Social Network for Teens/Young Adults with Type 1

cluckis — Mon, 25 Mar 2013 03:18:07 GMT

Hi There,

Since this section is about everything Type 1, I thought I would share something of my own making, Talk Type 1.

Talk Type 1 is an online social network for teens and young adults with Type 1 Diabetes. We allow our users to have there own blog, make events, and chat in our forum as well. We combined 6 different web applications together to make the best experience possible.

We are not just focused on Type 1 Diabetes though, we are also on the key things in teen/young adult life, which is relationships, friends, movies, music. Basically, we try to let you talk about Diabetes when you want to, and not all the time.

Ryan Reed, a NASCAR Development Driver with T1D, is a member on Talk Type 1, and supports what we do as well.

"Talk Type 1 is a great idea, ever since I was diagnosed with diabetes, I wanted to share my voice. This platform allows me to do just that." - Ryan Reed

If you would like to check us out, we're online at http://talktype1.com.

Also, just a disclaimer, I really don't know if this is allowed here, but since we are a support group and a social networking tool for diabetes, I thought it wouldn't hurt to share. If this isn't allowed, my bad sorry, feel free to remove it.

Anyway, I hope to see some of you sign up, and on Talk Type 1 later. If you have any questions feel free to reply here, or message Lucas on Talk Type 1. Thanks

School Nurse Issues!

jocismommy — Wed, 20 Mar 2013 00:39:12 GMT

Hello all! I'm sure it has been posted many times before, but we are having a horrible time with our daughter's school nurse. She is only ten and in fourth grade. We have had some incidents of her school nurse overstepping when it comes to educating Jocelyn on her diabetes. Things such as mild scolding for high blood sugars and carbohydrates consumed, to what may seem like passing judgement on diabetes management. We had a conference where we brought together her teachers, guidance counselor, Jocelyn's Dad), Jocelyn and myself. In that conference, there were a lot of issues addressed, including the way her nurse handles Jocelyn's daily diabetes care. I believed at that point things were better and we all were on the same page.
From that point on, Jocelyn would say things about howher nurse was going to be "mad' at her or how she's going to be in trouble if her sugar is high. I told Jocelyn to tell her we are working on adjusting her insulin with AI duPont and if she is upset, to contact one of us. I never knew how bad it was until last week.
While meeting with her counselor last week, Jocelyn told us there have been times, especially recently, where she has gone in the bathroom and cried because the nurse has yelled at her about her diabetes. There was even one day, she told us, her friends consoled her at lunch because she was so upset. To hear this completely broke my heart. Jocelyn told me she didn't want us to know because she knew we would confront the nurse, which in return, would make it harder on her. Right after that appointment, we were scheduled with endocrine. During that time, we spoke with the nurse educator and Jocelyn broke down to her as well. After hearing this, the nurse educator convinced Jocelyn something needed to be done. She also agreed that it is completely out of line for the nurse to be creating more stress on this child who already has so much to deal with. The next day, Jocelyn asked me to hold off on the conference because the nurse was in a good mood and happy with Jocelyn because she remembered to bring her new blood sugar meter to school. Still, as much as I didn't want to, I waited. I was in a bad position.
Today was the final straw. Jocelyn's dad picked her up, and shortly after, called me extremely upset. Jocelyn informed him that tomorrow the cafeteria will be serving water ice in celebration of the first day of spring. All the kids were excited, including Jocelyn. All that changed, however, when she went to the nurse. She told Jocelyn if her sugar is over 190, she was not allowed to have it. She then continued to say "..and don't go home and give your parents drama becase what happens here is under my watch." Jocelyn doesn't want to go to that school anymore and is begging me not to make her. She loves her teachers and her friends, it's just that nurse.
I am livid. This is not about water ice, this is about her making rules when she has no right to. This is about her disciplining my child for medical issues she has no control over. This is about her scaring my child, and having her keep things from us. I emailed her principal and told her we would be at school tomorrow morning for a conference.

I could kick myself for waiting, but I didn't want to stress Joci out even more. I guess I'm looking for someone who has been through this and to see if I'm going about things the right way. I'm sorry it is so long!!

glucose detecting dogs

Npetry — Mon, 18 Mar 2013 19:24:56 GMT

Researcher are conducting a survey of dogs that can detect glucose levels. If you or someone you know has such a dog, please respond to this survey: https://www.surveymonkey.com/s/3WKM5D3.

Thank you,

Nancy Petry, Ph.D

Professor of Medicine

University of Connecticut Health Center

Grad Student Research Project

Elanad — Sun, 10 Mar 2013 00:55:59 GMT

Hey Everyone!

I was diagnosed 2 and 1/2 years ago at the age of 23 with T1.

I am currently in a psychology doctoral program and have decided to pursue my research in this area. I am specifically looking at the relationship between different parenting styles and children's treatment adherence. I figured what better way to get participants than to reach out to the community!

Would anyone be willing to fill out some short surveys in the near future and help out a grad student?? Let me know!!

All ideas and help is greatly appreciated.

Thanks!

Bony T1 Teen Son

Rickysmom — Wed, 20 Feb 2013 17:36:55 GMT

My son was diagnosed 2 years ago and since then he hasn't gained an ounce. Hasn't grown much either so he is the smallest in his class. We are hispanic so we never expected him to be tall but his growth is definitely affected. We have the best doctors, he wears an omnipod pump and his levels are under control. I am looking for a diet that would help get some meat on his bones.

Type1Today Conference in San Antonio, TX

Kelsey — Mon, 28 Jan 2013 17:32:53 GMT

Hi All,

The South Central Texas Chapter of JDRF will be hosting the first-ever Type1Today Conference on February 9, 2013. I know it's late notice, but it's not too late to register. You can find out more information by visiting www.sctx-jdrf.org/Type1Today.html.

This conference will be for all ages and will include activities for children while adults attend sessions. I'll be speaking at one session and attending many others with my spouse.

I hope to see you there!

Annoying thing happened at work yesterday...

Allkindzacute — Sat, 19 Jan 2013 13:37:08 GMT

Hey guys! This is my first post here, it's nothing huge, just a little thing that happened at work yesterday that I felt the need to share. Wanted to get your thoughts...

I had a meeting with my boss and two other co-workers. Small and informal meeting, in her office, in the morning. She brought muffins for us, and not cute little ones, but those big ones with large pieces of "fruit" in them. Thing is, this is the second time she has a meeting and bring muffins. This is also the second time I have to explain to her that those things are loaded in carbs and so I stay away...

The kicker is that my boss is borderline Type 2D and knows VERY WELL (as do my co-workers) that I am T1...I have explained to her countless times how my life is regulated by insulin/how I count carbs/etc...And she has seemed pretty knowledgable about it in the past....So I ask myself: WHY CAN'T SHE BRING SOMETHING THAT ISN'T LOADED WITH CARBS TO OUR MEETINGS???

A friend said "well maybe she doesn't know that they are loaded with carbs", to which I answered "then maybe she should ask me what would be better for me (and her, at the same time)!

The three people at the meeting took the time to listen to my whining and explain the carb content, etc...but then they soon all dug in, cramming the muffins in their mouths, with little regard to how it made me feel. Yes, I know I said I didn't want one (even though I could have indulged and compensated with an extra couple of doses), but is it just me, or was I in a situation I shouldn't have been in in the first place? Has anyone been in that type of situation (where someone just doesn't get it) and how have you dealt with it?

Thanks!

Confessions of a Naughty Diabetic

jennagrant — Fri, 11 Jan 2013 16:25:51 GMT

Are there any little things you do in your diabetes management that you know you shouldn't, but do anyway?

With my pump I usually let the reservoir run down to zero units and if it's not convenient to do a site change then, I just wait. Sometimes I'll eat and wait hours before getting around to the new site. Always causes a crazy high, I always say I won't do it again...

And sometimes I'll wake up in the middle of the night and feel my blood sugar is high, but instead of testing and taking a quick bolus I just roll over and go back to sleep.

Oh, and one time I was super tired but my husband was in the mood to be intimate. I told him my blood sugars had been really off that day (a lie) and that we should wait for another time.

And I'm terrible about emptying the used strips from my test case so I find them all over the car, house, etc.

Blood Sugar Numbers

paisleypink — Mon, 07 Jan 2013 18:21:40 GMT

Hello. I am new to this site so hopefully I'm posting in the correct area. I'm 23 and was just diagnosed with Type 1 diabetes three months ago. I'm still learning new things and trying to get used to everything but I have a question I was hoping could be addressed by some seasoned diabetics. Right now I am counting carbs and injecting insulin before meals along with a long-acting insulin once each evening. My numbers are usually consistent throughout the day, but are always high after breakfast even when I correctly count my carbs and administer insulin. Here are two scenarios: one morning my blood sugar was 89 before breakfast and I was eating 40g of carbs (a bowl of cheerios and 1 cup of milk). Based on my calculations I gave myself 1 unit of insulin. (My carb ratio is 30g = 1 unit and my correction factor is 90). Two hours after breakfast I checked my blood sugar and it was 286. Another scenario: my blood sugar was 101 before breakfast and I was eating 26g of carbs (2 waffles), using the same calculations I gave myself 1 unit of insulin. Two hours after eating my blood sugar was 215. I am really surprised by these numbers. I guess I don't understand how 26g of carbs can make my blood sugar rise by 114 even when I give myself insulin. I spoke to my doctor about this but he didn't seem concerned. He informed me to stop checking my blood sugar after 2 hours (which is what I was originially told) and only check it before meals and before going to bed at night. I'm not sure if I agree with his thought process on the matter because I'm worried that being this high after breakfast will cause me complications down the road. Does anyone else have this problem or have any thoughts/ideas on the topic? Thank you so much in advance!

Gary Sheiner's Carb Counting for Pizza

jennagrant — Thu, 03 Jan 2013 21:27:03 GMT

Gary Scheiner is a diabetes educator and author of "Think Like a Pancreas." He's offering a free 10 minute class on dosing insulin (by injection or pump) for pizza. Just go to his site below and scroll to the bottom of the page. Good stuff.

https://www.type1university.com/

Neuropathy Medicines

Rich — Wed, 19 Dec 2012 21:38:16 GMT

Hi everyone,

I just started using a new medication for neuropathy and am wondering if anyone is using the same thing, gabapentin, or if you are using a different medicine. I don't have constant pains but enough discomfort that I decided it was time to discuss this with my endo dr. He is starting me on the lowest dosage. If you are using this rx, how are you feeling? Or if using a different rx, what are the benefits of that medication.

Any information/discussion would be helpful.

Rich

Best affordable meters?

RachelEmily25 — Wed, 19 Dec 2012 00:09:56 GMT

I am looking to purchase a new meter. Can anyone recommend an affordable and reliable meter? I was looking into the Walgreens brand True Track meter. With my insurance the test strips would only be $15 every 90 days which is a great price. Does anyone have this meter? How do you like it? I have been paying $95 every 90 days for Free Style lite test strips, $25 monthly for insulin, $230 every 90 days for OmniPod supplies. It's just getting to be too expensive for me. I need a cheaper route.

Senior Research Project

Bri — Wed, 12 Dec 2012 21:54:36 GMT

Hey guys!

I'm a senior and in a Biomedical Innovations class. I'm doing a research project to present at IUPUI in Indianapolis in the spring and need your guys' help!

I know that we all have different foods that really send our sugars skyrocketing no matter how much insulin we give. So what food is it that does that to your sugar? I'm going to gather up a few foods that seem to come up the most and look into what ingredient(s) those foods have in common to see if that's where the problem is.

Thanks in advance!

-Bri

Help beats Sympathy, anyday.

KanakKats — Mon, 29 Oct 2012 19:08:51 GMT

I'm a 16 year old Insulin Dependent Diabetic. Was diagnosed at the age of 2.5 years. Needless to say, it's not been an easy journey. But I've coped with it fairly well, if I may say so myself', or atleast was coping well.

Lately, I've become extremely frustrated with it. It drives me insane. I've been trying to control this thing for what I remember as my entire life, but it just doesn't end. And now, my control is not satisfactory. My readings are out of control. I don't take my injections on time, or with correct doses. I've almost stopped caring. I can't talk to anyone about it, all I get is sympathy, which I don't want. I could use some help. My mood is affected, duh. I'm angry, I'm low, I'm almost depressed. Yes, I still go about my routine and smile at people, but I've overdosed on insulin twice in the last week alone. I know the hazards. Makes no difference to me. I'm losing hope. I don't know what to do. Anyone with experiences that are similar, any guidance, anything? I could really use some help.

RE: Struggling with snack time

Jenn — Tue, 16 Oct 2012 19:50:36 GMT

I have a daughter that is 6 years old and has type 1. When we get home from school I offer her a snack. I offer two different options.Just recently she starts crying and throwing a tantrum because its not what she wants or its not enough. Then she will start saying why cant i eat what I want and why does she have diabetes and not her sister.I was wondering if any other parent has gone through this kind of behavor and how you handled it. I do get alittle stressed and start to feel bad for her. Ill take any advice.

Thanks for listening

A concerned parent

ACT/SAT Testing

Michelle — Thu, 04 Oct 2012 23:10:30 GMT

Help.... We have recently been informed that our seventh grader has been invited to take the ACT and SAT this Fall. We are very excited about this possibility and have begun the tedious paper work for some testing accommodations. At present, I am inclined to request "Stop Test" only. He has had a 504 in place for years to address BG monitoring during standardized testing. I would love some input from those of you who have been down this road before.

Many Thanks-

Michelle

Having problems with my Endocrinologist authorizing mail order prescriptions.

Brian — Wed, 26 Sep 2012 05:39:53 GMT

To make a long story short... I'm over due for my endo doing blood work and exam so he won't authorize my mail order for testing supplies and humalog.

I would make an appointment but I can't afford the deductible right now. I don't have any problem paying for humalog because I have met the deductible for prescriptions. Has anyone had trouble with this before?

I don't see why he just can't authorize the mail order. I have my blood sugar under control. I am 44 but I beat other bike riders in there 20's and 30's so my health is very good and I haven't felt this healthy since I was in my early 30's. I take very good care of myself. I have faxed my endo my daily logs showing my glucose, diet and workout logs. I told him about my lack of funds problem that I will have for a few months due to some unexpected house and car repairs that has come up.

I'm going to call a family practice doctor and I'm going to ask if they can authorize prescriptions because their office visits cost a lot less.

I'm fed up with endocrinologists because I've never got much help from them. I have learned much more from fellow diabetics and nutritionists. In fact, it was a dietitian that helped me figure out how much insulin to take to get my glucose levels under control.

Insomnia, anyone??

kesoconally — Fri, 31 Aug 2012 22:44:54 GMT

I have had Type 1 for nearly 28 years (I am 30), and I've always had trouble sleeping!

I am doing a study to see if I'm the only one...and I am offering a cash prize draw for people who complete my questionnaire.

Three chances to win, £50, £25, and £25 (if you're in the USA, that's about $75, $37.50, and $37.50!)

So whaddoya say? Help this girl get her MSc and help lots of people with Type 1 get better sleep at the same time!

And maybe win some money while you're at it!

Here is the link:

http://uwehls.qualtrics.com/ SE/?SID=SV_efBedEYI7lMjAk4

If you have any questions, please email me: kestrel2.oconally@live.uwe.ac.uk

University of the West of England, Bristol

Good Iphone app that also exports numbers well?

larsojor — Thu, 30 Aug 2012 23:42:08 GMT

I'm looking for an Iphone app that I can log my sugars etc. into. I've tried a couple, but the problem has been in how they export the data. A long list of my blood sugars doesn't help me! I'm looking for an easy one that will let me export in the usually breakfast/after breakfast -- lunch/after lunch etc. spreadsheet style format, like the old paper ones we used to use. Anyone found one that works well this way? I find I'm using the phone a lot, but then transferring all my numbers to a more endo/ me friendly version later.

Thanks!

Petition for Disease Name Change

Hollie — Sun, 26 Aug 2012 00:50:07 GMT

http://www.change.org/petitions/center-for-disease-control-change-the-name-of-type-1-diabetes-to-betazelltod-disease

This is a petition that I started to get Type 1 recognized as it's own disease. It is not the same disease as Type 2 and I believe that the medical and the public at large need to understand this. I believe that by being known as it's own disease, it is a step towards better education and better medical care.

Hollie

Where do you test when in school? For a sixth grader? Everyone, need your answer

Dianemarie — Mon, 13 Aug 2012 22:49:32 GMT

My daughter's school wants her to test in the office. I told them that is not OK. Why should she have to leave class, find an office worker, get into the little private room, check her sugar and return to class. She is quite capable of checking in her classroom with no danger to any other student. There is no reason her teachers, she has about 5 this year, cannot have an index card with the words "Under 90, feed her, over 200 give insulin" on it, and she can be required to show the meter to those teachers when she checks. What good will it do if she walks to the office, WHERE THERE IS NO NURSE to check 4-5 times a day? What do you or your kids do?

Thanks, Diane