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Blogs from JDRF and/or TypeOneNation
  • Advocacy Blog

    Join the Artificial Pancreas Petition

    • 195 Comments
    Hope you’re ready to help us kick off the Artificial Pancreas Advocacy Campaign (APAC) today! You can start by joining the Artificial Pancreas petition , which asks the FDA to make sure the artificial pancreas (AP) is available as soon as possible...
  • Advocacy Blog

    Who Motivates You?

    • 161 Comments
    My name is Camille Nash and I am the National Volunteer Chair for JDRF Advocacy. I’m also the parent of a daughter with type 1. As we start off the new fiscal year at JDRF this month, I want to welcome those of you that are new to our advocacy efforts...
  • Advocacy Blog

    Why do we engage on regulatory issues?

    • 156 Comments
    A new study from the California Healthcare Institute (CHI) peaked my interest this week. The study looked at data maintained by FDA to examine FDA’s performance in approving products. The results show that, beginning in 2007, the time to get products...
  • Advocacy Blog

    Starting Tomorrow: The Artificial Pancreas Advocacy Campaign

    • 144 Comments
    Starting tomorrow, JDRF launches the Artificial Pancreas Advocacy Campaign (APAC) and you can help by adding your name to the Artificial Pancreas Petition ! Click here to register to receive an update from us when we take our first step in making sure...
  • Advocacy Blog

    Email Congress to Renew Critical T1D Funding

    • 66 Comments
    Help me tell Congress, “Renew the Special Diabetes Program (SDP)” by sending a quick email (…and thanks again to those of you that made calls earlier this month, use this email alert to follow up )! As you know, the SDP is a critical...
  • Advocacy Blog

    Happy Holidays from the JDRF Advocacy Finger!

    • 46 Comments
    Happy Holidays! Check out a holiday video message from the JDRF Advocacy staff, all the best in 2012! =] Hasan JDRF Advocacy
  • Advocacy Blog

    Artificial Pancreas and FDA--The Latest

    • 42 Comments
    It has been a little while since we’ve posted on FDA and the artificial pancreas and we thought you might be interested in an update. As you may recall, FDA and NIH held a public meeting in November on the artificial pancreas. At that meeting researchers...
  • Advocacy Blog

    Type 1 Talk Topics Announced!

    • 24 Comments
    For the past few weeks we've been asking you "What do you want to talk about?" for our World Diabetes Day Type 1 Talk program . Well, we were overwhelmed by the number of people who took the time to share their ideas and/or vote on potential...
  • Advocacy Blog

    First Artificial Pancreas Outpatient Trial in the U.S. Gets FDA Approval

    • 24 Comments
    I wanted to share with you the very exciting news that FDA recently approved the first clinical trial in the U.S. of an artificial pancreas system to be performed outside of a hospital! See the JDRF statement for more details . It’s great to see...
  • Advocacy Blog

    Speeding Daily Progress Research Update: What Time Works Best for You?

    • 21 Comments
    As Hasan mentioned yesterday, a leading JDRF scientist will be providing a live research update for the winning Speeding Daily Progress topic, islet cell transplantation . The update will take place next Wednesday, August 25 via live online video stream...
  • Advocacy Blog

    More than Ever: Your Feedback Is Important

    • 20 Comments
    Every year the JDRF Advocacy team conducts a survey of our T1D advocate network and this year’s survey is right around the corner, coming this Thursday, February 16! Since the beginning of October 2011, the JDRF T1D advocate network has grown by...
  • Advocacy Blog

    And Your Favorite SDP Funded Research Topic Is…

    • 16 Comments
    Thanks to all of you that submitted a vote for your favorite Special Diabetes Program (SDP) funded research topic. We wanted to make sure we shared the results with you, please see below. Also, stay tuned for a blog post letting you know when and where...
  • Advocacy Blog

    JDRF Advocacy and the Adult Type 1 Audience

    • 16 Comments
    A few months ago a diabetes blogger, Scott Strange, penned an ' Open Letter to JDRF ' on his blog, Strangely Type 1. Scott provided an honest assessment of his frustrations with JDRF, especially on what he felt is our inattentiveness to the needs...
  • Advocacy Blog

    Government Day on the Way

    • 15 Comments
    Government Day is coming your way! Government Day is actually a 4 day event that is part training session, part research update, part networking opportunity, and part celebration of our Advocacy Program. This year, we'll be convening from March 12...
  • Advocacy Blog

    Meet Madison, CC11 FB Contest Winner (Apply to CC11 by 10/4)

    • 14 Comments
    Happy Saturday! This weekend is turning into a nail biter for many JDRF advocate families except for Madison's, who found out last Thursday that Madion is the winner of CC11 FB contest. So I wanted to remind you that if you're interested in applying...
  • Advocacy Blog

    Open Government Day

    • 13 Comments
    Each year in February or March, we hold a four day conference called ‘Government Day’. Yes, I know it’s a bit of a misnomer, but bear with me. The main audience for this event is our group of advocate leaders from across the country...
  • Advocacy Blog

    FDA 101

    • 12 Comments
    Wow! My last post really piqued your interest. Thanks to everyone for well over 100 comments posted and many more conveyed through email. I have read through all of them and there are some great ideas and questions in there. Because of the interest and...
  • Advocacy Blog

    UPDATE: 100% There on the SDP!

    • 11 Comments
    I can’t believe that I am already typing a follow up to my post earlier this morning… and I am getting chills of excitement doing it! All of your effort and support just paid off!!! The multi-year renewal of he Special Diabetes Program (SDP...
  • Advocacy Blog

    Type 1 Talk Presenters--Round 2!

    • 11 Comments
    We are now just days away from JDRF's first ever Type 1 Talk USTREAM broadcast on World Diabetes Day! As more events are posted on Facebook (66 so far!), topics decided , and presenters announced , I am getting more and more excited for the big day...
  • Advocacy Blog

    Type 1 Rider and the Tour Divide

    • 11 Comments
    Normal 0 false false false MicrosoftInternetExplorer4 Back in January, some folks at our JDRF chapter in the Raleigh, NC, area called me and asked if I would be interested in talking to Tony Cervati. I knew who Tony was, mostly from his excellent Type...
  • Advocacy Blog

    Artificial Pancreas Petition: Over 20,000 Strong

    • 11 Comments
    Wow… you all are AA-MAAAA-ZING! Before checking out for the Columbus Day holiday last Friday, I had challenged you to help get the Artificial Pancreas (AP) petition to 20,000 supporters. I knew I should have asked for something higher because not...
  • Advocacy Blog

    Artificial Pancreas: Special World Diabetes Day Webcast

    • 10 Comments
    I wanted to invite you to join JDRF’s President & CEO, Jeffrey Brewer, and Assistant Vice President of Treatment Therapies, Aaron Kowalski, Ph.D., on November 14 at 3:30 p.m. ET for a special live webcast on World Diabetes Day ! This is an exciting...
  • Advocacy Blog

    Special Diabetes Program (SDP) Funding Approved by U.S. Senate

    • 10 Comments
    Thanks to you and your advocacy efforts on behalf of JDRF! I am happy to report that early this morning (around 2:15 am to be more exact!), the U.S. Senate passed legislation which includes a one-year renewal of the Special Diabetes Program (SDP) at the...
  • Advocacy Blog

    Thanks to Type 1 Diabetes and JDRF

    • 10 Comments
    Yesterday, Angie Platt, Children’s Congress 2013 Chair, sent me the following so I could share her experience at the 2011 event with you, so be sure to apply by November 1 if you’re between the ages 4-17 . Hope you enjoy and be sure to leave...
  • Advocacy Blog

    NEW VIDEO: Why We Became T1D Advocates

    • 10 Comments
    During my three and a half years working on the JDRF Advocacy team I've been asked over and over again "Why should I become a JDRF Advocate?" To me it always seemed fairly simple--your Congressperson needs to hear from you about the T1D...
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