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Thanks for Sticking with Us - Happy Volunteer Week
26 Apr 2013
Giving Thanks - Family, Friends and the SDP
Good morning. As I have spent the last days preparing for the visit of my family for the Thanksgiving holiday, I have been thinking about what I am grateful for. As the National Chair of JDRF Advocacy and the parent of a daughter with type 1 diabetes, I am often reminded of what our JDRF community has...
21 Nov 2012
Congratulations on the Final AP Guidance
After all of the work many of you put into making the artificial pancreas guidance from FDA a reality, I wanted to say thank you and congratulations! FDA released the final guidance and included nearly all of JDRF’s suggested changes – see the statement we made . This truly is a milestone...
16 Nov 2012
T1D and Veteran's Day
November is National Diabetes Month. We also celebrate Veterans’ Day and honor those who have served or are serving in the United States military. Captain Joseph Budzyn of Mokena, Illinois, an Eagle Scout and a 2008 graduate of the Air Force Academy recently shared his story with me. Nominated...
9 Nov 2012
The Time to Renew the SDP is NOW!
For the past few months, we’ve been stressing the importance of the Special Diabetes Program (SDP) , which has in one way or another changed the lives of every person living with diabetes today. Since Congress and the Administration created the program in 1997, the SDP has led to groundbreaking...
7 Nov 2012
A Party to Beat All Parties
When my daughter was diagnosed with T1D, our family got a lot bigger; we became part of the JDRF family. What gives me great hope for a better life and eventually, a cure for my daughter, is that so many people share this hope for their loved ones, too. Our voices have been powerful tools in ensuring...
24 Sep 2012
Who Motivates You?
My name is Camille Nash and I am the National Volunteer Chair for JDRF Advocacy. I’m also the parent of a daughter with type 1. As we start off the new fiscal year at JDRF this month, I want to welcome those of you that are new to our advocacy efforts and also reconnect with those that have been...
26 Jul 2012
#JDRFac2012: Cure T1D!
#JDRFac2012 is a blog series to prepare JDRF’s ‘All for 1’ Annual Conference attendees for their time on Capitol Hill, and to educate you as readers on why JDRFers will be on the Hill on your behalf and how you can help . We’re back from Memorial Day but I’ll be honest,...
29 May 2012
#JDRFac2012: Treating Type 1 Diabetes…
#JDRFac2012 is a blog series to prepare JDRF’s ‘All For 1’ Annual Conference attendees for their time on Capitol Hill, and to educate you as readers on why JDRFers will be on the Hill on your behalf and how you can help . Hope you all are getting ready for Memorial Day! Before you head...
24 May 2012
#JDRFac2012: Preventing Type 1 Diabetes!
#JDRFac2012 is a blog series to prepare JDRF’s ‘All For 1’ Annual Conference attendees for their time on Capitol Hill, and to educate you as readers on why JDRFers will be on the Hill on your behalf and how you can help . Last week, I shared with you the monetary investment made into...
15 May 2012
JDRF Press Release Thanks Congress
Check out the official thanks from JDRF to Congress for its support of the Special Diabetes Program (SDP). Some great highlights on why the SDP is important to T1D and how Congress is supporting it. You can also thank Congress by visiting our call-to-action page and send a quick email to your Members...
11 May 2012
#JDRFac2012: Partners for the Cure
#JDRFac2012 is a blog series to prepare JDRF’s ‘All For 1’ Annual Conference attendees for their time on Capitol Hill, and to educate you as readers on why JDRFers will be on the Hill on your behalf and how you can help . In June, JDRF’s chapter staff and volunteer leaders will...
9 May 2012
JDRF Annual Conference: Help Get Ready
In June, JDRF’s Annual Conference will be held in Washington, D.C. and you can help us get ready for it – visit our call-to-action page and send a message of thanks to Members of Congress who supported the Special Diabetes Program (SDP) letter recently issued by the House and Senate Diabetes...
3 May 2012
JDRF Advocacy on #DSMA Radio
In case you missed it, I wanted share with you a recording of a weekly online radio show broadcast by Diabetes Social Media Advocacy Live (DSMA), where yours truly was invited to talk about our advocacy efforts. I had a great time talking with Cherise Shockley , the founder of DSMA, and one of the co...
20 Apr 2012
2 Minutes to Keep the Ball Rolling on Research
Not sure if you’ve had the chance to take a look at our recent call to action, ‘ Continue NIH Research like the Artificial Pancreas ’, but it shares some great information about how far we’ve come with research because of federal funding programs like the Special Diabetes Program...
13 Mar 2012
T1D Nominated to US Olympic Hall of Fame
Many of us in the type 1 diabetes (T1D) community know and love the name Gary Hall, Jr. Not only for all that Gary’s accomplished as a swimmer during the Olympics (see link towards bottom for more on Gary’s Olympic career) but also for all that he does to advocate and help the T1D community...
13 Mar 2012
FDA Artificial Pancreas Draft Guidance – What JDRF Thinks
As you know, JDRF conducted an extensive advocacy campaign in 2011 which resulted in FDA release of draft artificial pancreas guidance in December. Since then, our team has completed a thorough analysis of the FDA draft, speaking with many experts. Overall, we still remain very encouraged by the guidance...
28 Feb 2012
After the Guidance – What Happens Now?
Happy New Year! I know many of you have been following developments with the artificial pancreas guidance from FDA, so I wanted to give you an update about what’s been going on. After FDA released the artificial pancreas draft guidance document on December 1st our initial review was that the guidance...
11 Jan 2012
Would you talk to T1D?
Last week, we told you that currently 85% of people with T1D are adults and this little piece of information generated lots of great feedback from you all. Many of the comments were hopeful and others, about the obstacles you face while beating T1D every day of your life. (Again, I want to thank you...
9 Jan 2012
85% T1Ds Are Adults…
Yesterday, our JDRF Advocacy page on Facebook posted a little factoid, ‘…currently, adults make up approximately 85% of those living with type 1 diabetes,’ and then we asked, ‘Are you a T1D adult, T1D teen, or a parent of a T1D? We'd love to know what you think and how T1D...
4 Jan 2012
Happy Holidays from the JDRF Advocacy Finger!
Happy Holidays! Check out a holiday video message from the JDRF Advocacy staff, all the best in 2012! =] Hasan JDRF Advocacy
22 Dec 2011
Artificial Pancreas Thanks to Congress
Today, you can help diabetes advocacy efforts by thanking your Members of Congress while JDRF staff and other experts review the intricate details of the artificial pancreas guidance that was published on December 1. We remain encouraged by the draft guidance thus far and hope you are too! We would not...
14 Dec 2011
Thank the FDA and Pass it on!
Thanks to all your efforts, last week the FDA put out encouraging draft artificial pancreas guidance . While a detailed review is still under way, the FDA draft appears to lay a foundation for accelerating the development and availability of artificial pancreas systems that will improve the lives of...
8 Dec 2011
Artificial Pancreas: FDA Releases Guidance
In the past several weeks over 110,000 diabetes advocates signed onto a petition asking the FDA to issue draft guidance by December 1 that would advance the testing and development of artificial pancreas systems. We wanted to share the news that FDA has just published this important draft guidance and...
1 Dec 2011
The Platt Family: Artificial Pancreas Now, Please!
The importance of why we need an artificial pancreas (AP) sooner than later is best explained by those who hold hope in it's benefit! Over 110,000 diabetes supporters have signed a petition asking the FDA to make sure we have access to this vital device. If you have haven't signed the AP petition...
17 Nov 2011
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