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Giving Thanks - Family, Friends and the SDP
Good morning. As I have spent the last days preparing for the visit of my family for the Thanksgiving holiday, I have been thinking about what I am grateful for. As the National Chair of JDRF Advocacy and the parent of a daughter with type 1 diabetes, I am often reminded of what our JDRF community has...
21 Nov 2012
T1D and Veteran's Day
November is National Diabetes Month. We also celebrate Veterans’ Day and honor those who have served or are serving in the United States military. Captain Joseph Budzyn of Mokena, Illinois, an Eagle Scout and a 2008 graduate of the Air Force Academy recently shared his story with me. Nominated...
9 Nov 2012
A Party to Beat All Parties
When my daughter was diagnosed with T1D, our family got a lot bigger; we became part of the JDRF family. What gives me great hope for a better life and eventually, a cure for my daughter, is that so many people share this hope for their loved ones, too. Our voices have been powerful tools in ensuring...
24 Sep 2012
Who Motivates You?
My name is Camille Nash and I am the National Volunteer Chair for JDRF Advocacy. I’m also the parent of a daughter with type 1. As we start off the new fiscal year at JDRF this month, I want to welcome those of you that are new to our advocacy efforts and also reconnect with those that have been...
26 Jul 2012
JDRF Advocacy on #DSMA Radio
In case you missed it, I wanted share with you a recording of a weekly online radio show broadcast by Diabetes Social Media Advocacy Live (DSMA), where yours truly was invited to talk about our advocacy efforts. I had a great time talking with Cherise Shockley , the founder of DSMA, and one of the co...
20 Apr 2012
Dr. Kowalski Video: Ask Congress to Support T1D Research
Yesterday we had Dr. Aaron Kowalski, JDRF’s Assistant VP of Treatment Therapies, in our JDRF Advocacy office. I took the opportunity to capture some video thoughts from Dr. Kowalski on why we need to make sure we keep working to support diabetes research where ever possible. See the video below...
18 Apr 2012
2 Minutes to Keep the Ball Rolling on Research
Not sure if you’ve had the chance to take a look at our recent call to action, ‘ Continue NIH Research like the Artificial Pancreas ’, but it shares some great information about how far we’ve come with research because of federal funding programs like the Special Diabetes Program...
13 Mar 2012
Continue NIH Research like the Artificial Pancreas
Good Thursday to you and hope you had a chance to follow along our #JDRFGovDay efforts on Twitter earlier this week. Volunteer JDRF Advocacy leaders were on Capitol Hill on Monday and Tuesday to ask Congress to support a letter issued to the congressional leadership by the House and Senate caucuses on...
8 Mar 2012
#JDRFGovDay Reflections: Day 2
See a few videos from day 2 of 2012 JDRF Government Day. During this day we covered information on our efforts and tools for advocacy. Hear advocates share their connection to T1D and what they’ve learned so far! Some folks just want to help our cause because it's the right thing to do, hear...
5 Mar 2012
#JDRFGovDay Reflections: Day 1
Check out a few videos I was able to capture of our advocacy leaders during registration yesterday. You can follow what we’re doing at the 2012 JDRF Government Day by tracking us on Twitter using the hashtag #JDRFGovDay… we already have a few pictures up and more to come!! =] Tomorrow we...
4 Mar 2012
VIDEO: Rep. Kevin Yoder Keeps His Promise
As I have mentioned before, one of my favorite parts of the Promise Campaign is getting to hear the feedback from the meetings. More often that not, I hear about the overwhelming positive responses from Members of Congress and the outpouring of support for type 1 research. Hearing about the meeting experiences...
14 Dec 2011
Why the JDRF Advocacy Survey?
Please mark your calendar for May 2. That's the launch of our uber-important 2011 JDRF Advocacy Survey. You can access it via email ( sign up here to receive ), or through the JDRF Advocacy Facebook page and our Twitter feed (so make sure you ' Like ' or ' Follow ' us). Also, if you're...
27 Apr 2011
APP Research Developments
I’ve talked a lot about the regulatory happenings with the artificial pancreas, but I thought you all may be interested in a research update too. While JDRF is busy working with FDA to pave the way for future studies, including those in the home setting, the researchers are continuing to test the...
20 Apr 2011
December Blog Highlights
Last month proved to be one of the most exciting months of the year here at JDRF Advocacy. December ended up being the month in which the Special Diabetes Program was renewed by Congress ! This was the best present we could receive for during the holiday season. By renewing the program, Congress has...
7 Jan 2011
Talking about "Type 1 Talk"
A few weeks back we made a quick mention about our plans for "Type 1 Talk" on World Diabetes Day, November 14. The program was highlighted again in Scott Strange's blog post from this week, After an Open Letter, the JDRF Opens Up--Part II , so I thought now was the perfect time to share...
15 Sep 2010
Op-Ed Highlights JDRF's Corporate Partnerships
JDRF was featured in an op-ed in The Politico yesterday, which discussed innovative ways to advance research through corporate partnerships. The article notes that JDRF has invested $70M in partnerships over the past five years in an effort to more quickly advance treatments and a cure for type 1. Take...
10 Sep 2010
An Exciting Fall for the JDRF Advocacy Blog!
The JDRF Advocacy blog has some exciting stuff coming your way this fall! So be sure to follow us along as we tell the story of how you’re making a difference advocating for a cure for type 1 diabetes. Our team will be on hiatus for the Labor Day weekend but to give you a glimpse into next week…...
3 Sep 2010
Thanks for Participating in the CC11 Contest on Facebook!
Yesterday was the final day of the 2011 Children’s Congress (CC11) Contest on Facebook, so thanks to those of you that participated by submitting your applications during August! We’ll be conducting a random drawing later in September to select the winner of the contest. Stay tuned for the...
1 Sep 2010
Tips for Applying to CC11
When applying to the 2011 Children's Congress on Facebook or on the Children's Congress website , I would recommend that you do the following: Before starting the application, write a letter addressed to your Member of Congress. The letter MUST include the following: Your personal story about...
31 Aug 2010
CC11 Contest on Facebooks Ends in Less Than 48 Hours
Last Friday, I reminded you that the 2011 Children’s Congress (CC11) Contest on Facebook will end this month, meaning tomorrow. Here’s your final video reminder, since there are less than 48 hours to apply and be part of the contest. However, if you miss the CC11 contest on Facebook deadline...
30 Aug 2010
CC11 Contest on Facebook: Last Weekend to Apply Before Deadline
Watch the video below about the Children's Congress Contest on Facebook (FB) before it ends on Tuesday, August 31, 2010. The video will give you tips on what you need to prepare before you start working on your application for the 2011 Children's Congress (CC11). For details on what to include...
27 Aug 2010
6 Days to Go: Tips to Apply to CC11 This Weekend!
The first ever Children’s Congress Contest on Facebook (FB) is quickly coming to an end. If you haven’t already submitted your 2011 Children’s Congress (CC11) application on Facebook, you need to do it this weekend so you can be part of a random drawing where one applicant will be selected...
26 Aug 2010
Islet Cell Presentation In Our Ustream Archive
In case you missed it yesterday, Julia Greenstein, Director of Beta Cell Therapies at JDRF, walked through an update on our research in the area of islet cell transplantation. Julia also took the time to answer questions from Ustream participants. You can access the presentation, including the Q&A...
26 Aug 2010
Reminder: Research Update on Islet Cell Transplantation
Thank you again to those who participated in our Speeding Daily Progress conversation over the past few weeks. As we mentioned last week, your research update will be on Islet Cell Transplantation. The update will be this Wednesday, August 25 at 12:00 pm EDT via online video stream . Julia L. Greenstein...
23 Aug 2010
Details for the Speeding Daily Progress Research Update
Thanks to all that commented on yesterday's blog post telling us what time works best for them for the upcoming research update. As a result of your feedback, we have narrowed down the time that works best for the majority of those who responded. The research update will be held on Wednesday, August...
19 Aug 2010
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