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T1D with hypothyroidism and Adult Growth Hormone Deficiency Syndrome

I’m wondering if anyone else here has been diagnosed with Adult Growth Hormone Deficiency? I have been T1D for 33 years now, and Hypothyroid for 10. At any rate, 4 or so years ago, I had daily severe lows that were not helped by adjusting my insulin (I am on a pump). I don’t even know how many times my now-fiance had to help take care of me, or the paramedics showed up to my work before my doctors were able to come up with SOMETHING to diagnose me with. At first, she thought that I had cancer on my thyroid or pancreas, so I had multiple MRIs and CT scans that showed that I had nothing abnormal in my body. She performed different blood tests to determine what hormone or other regulator might be out, but the only thing that she found deficient was IGF-1 (I think that it was 1, it might have been 2), and the only way to help that was to take growth hormone. I had also, during this time, gained about 15 pounds in a couple of months, and although it might have been partly because of the increase in carbs for lows, at that time I was monitoring my levels and my eating patterns very closely. At any rate, I started the growth hormone, and things have been great since I’ve been on it, and my IGF levels have been good. The only sort of questionable things about this are that growth hormone is known to increase blood sugar, as well as help you to lose weight (which I lost most of that weight). The other oddity is that when I have had to change insurances or when I have had to wait for that yearly ok from my insurance to even have the meds covered (it’s sometimes lapsed 3 months), I only start getting those severe lows after about 3 months of not taking the medication. I find this weird, but I don’t know the methodology behind this. Also, children are usually the ones that are diagnosed with Growth Hormone Deficiency, so it’s weird to be an adult with it, especially since I have to explain to different people at the medical companies that I am not caring for a chile with the deficiency, but that I am one!

Any thoughts?

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