schreiter - All Comments

re: My New PINK Pump & My Life with Type 1! (video)

Brian — Thu, 08 Mar 2012 21:53:01 GMT

GREAT video!!!!!! Thanks for sharing!

Elie, I saw the thing about the tattoo thing too. That will be cool when that happens!

re: My New PINK Pump & My Life with Type 1! (video)

Elie — Tue, 14 Jun 2011 13:21:52 GMT

You are a total badass. (That's a good thing.) And are those tattoos? I read an article a while back from MIT. They're trying to develop tattoos that will somehow show glucose levels. Well, when that happens, I'll be camping outside of the clinic in a tent...the whole night lol

re: My New PINK Pump & My Life with Type 1! (video)

Mark — Thu, 09 Jun 2011 14:50:13 GMT

This is a great video Hayley! You shared a very personal thing and it is very well done. By the way that pink infusion set is cool how it clicks together! It does click together right? I don't know that much about pumps because my sister doesn't have one yet.

re: GUILT

Hayley Schreiter — Sun, 02 May 2010 07:08:15 GMT

p.s. Aimee, my friends tell me they love me when I'm low, too. :) I guess that has its ups. Stay healthy :)

re: GUILT

Hayley Schreiter — Sun, 02 May 2010 07:07:22 GMT

Ginny, Bill and Aimee..thanks for the comments..they have made me feel a lot better about my whole situation, and while I am still worrying about everything diabetic, every day, I know I'm not the only one, and that makes me feel connected to you guys, and hopeful. Thank you so much.

-Hayley

re: GUILT

Aimee — Wed, 14 Apr 2010 19:34:24 GMT

First and foremost, you are allowed to feel the way you're feeling. Do not feel guilty about that. Type One is exhausting sometimes. I describe it as an every second of every day disease. As long as you're not crying yourself to sleep every night, then you're fine. You're dealing with it and give yourself an enormous pat on the back for that. It took me 10 very long years to deal with it/accept it and then i finally opened up about it. And OH MY GOD, did it pour out of me. I started doing a ton of artwork regarding diabetes and it made me so happy to finally have these bottled up feelings out of me. I'm living my 20th year now and sometimes I completely have a pity party for myself and I deserve it. I am allowed to be sad and frustrated and whoa is me and throw angry fists in the air, but i also try to make fun of diabetes as much as i possibly can. I mean, diabetes can be really funny sometimes. The things that come out of my mouth when i'm low? Wow!! Funny stuff. I become a complete goofball. I've just tried to learn that every time i dwell on the bad parts of diabetes, it does nothing for me and i wind up being sad for a long while. Every time i make fun of diabetes, i have everyone rolling on the floor - diabetic or not. It's tough and though the technology has come leaps and bounds from when i was diagnosed, it's still tough. You're doing wonderful, please believe that. I have a billion and one diabetes stories if you ever need a good pick me up.

Man it's so hard not to write a long comment to this topic!!

re: GUILT

1HappyDiabetic — Tue, 13 Apr 2010 23:23:04 GMT

Your headline caught my eye. GUILT

I just became a member of Juvenation a few minutes ago and your post rang a cord with me.

I've been a type 1 for 22 years now and have gone through questioning myself just like you at a few points in my life. I still to this day feel the guilty about the cost of my supplies I put my own parents through. I remember cutting up test strips back in the day.

My parents would tell you, the cost they had to pay for my supplies, was worth the pain. So knowing that, has given me some closure on feeling guilty for my cost burden.

College is tough, I would say the hardest time while being a Diabetic. So many things, pulling in you in so many directions. It's hard to stay focused on your diabetes. From your post, I think you are doing a great job! Serioulsy! You seem so prepared, that's great!

Well you wanted inspiration, that wasn't it... lol...

YOUR an inspiration! I think the fact that you have come so far, and faught so hard is worthy of being inspirational. Diabetes on top of all that? Do you know how hard it is to be in your shoes without dealing with diabetes everyday? HARD! You are doing it all, with diabetes inturrepting you everyday, trying to get in the way, messing with your head, and everything else. You are amazing girl. You are a true inspiration to me. Made me write this response.

Because most people don't have diabetes in their way every single second of the day.... sometimes you don't get that pat on the back when you really should.

Most people don't know how hard it is to be "US" sometimes. I do though, so I am saying Offically you are an Inspiration and I wish you the best.

Bill

SO I think you

re: GUILT

ginny — Mon, 12 Apr 2010 03:52:09 GMT

I am sorry to hear you are feeling that way! I can definitely identify with multiple parts of your guilty feelings. First though, it was brought to my attention by another Juvenation member to stop feeling guilty! Diabetes is stressful enough, please don't heap the guilt on yourself! You sound like you are doing a great job! An A1C of 6.8 is great! Testing often is a method of obtaining good control- I myself tend to be a compulsive tester- and packer of all my gear/ supplies when going anywhere so I can identify with that for sure. Recently I got a CGM, and that has helped a lot with my BS stress.

And I understand how you could feel like a burden to others, I felt like that myself, but I had to realize that 1- I am not a burden to those that love me (in fact I have helped others with hypoglycemia, etc...) 2- the more you share with your loved ones the more they can understand. People have stuff in real life, we have diabetes, some people have other crap to deal with too.

College can be a tough time, since you probably feel like you are the only one that has to be so careful about everything! I often felt like Debbie Downer, since I had to always think of my health and couldn't just be impulsive and spontaneous. I am pretty sure I had undiagnosed depression through college from the whole diabetes thing. I just started being more open about my diabetes in the last 3 months- I have had it for 23 years and kept it mostly to myself. From that I have felt a lot more liberated and my information has actually helped other people! When people know what you are dealing with they do want to help, whether that be emotional support or whatever. And sharing often opens doors for them to share with you too. That can bring strength, which can give you drive to help others.

It is a weird thing the emotional side of dealing with diabetes. I recently just started going to therapy and that has helped. I have also joined a local meet-up group, which it sounds like you are trying (keep trying there are definitely more T1's where you are, that probably feel similar). I also have joined a Team WILD - which is a diabetic women's triathalon team. You are probably more of an inspiration to people than you think.

I am not sure if this helped at all- and sorry it was so long! I felt like I was reading my diary with your blog though, and just wanted you to know you aren't alone with how you feel.

re: I used 7 strips at the gym tonight. Any ways to avoid going low?

Hayley Schreiter — Mon, 22 Feb 2010 22:17:00 GMT

@Keith221, I already have tried suspending my pump beforehand and I don't want to start too high because that's not healthy for my body.

@Ginny, I will try finding protein shakes!

@Sjwprod, won't there most likely be some active insulin on board within four hours at any given time before a workout? Also, I have done aggressive and lengthy activity for more than 35 min and started with a BG of 185+ and still find myself going LOW..maybe it's just a difference between the rate at which our bodies absorb insulin? There are so many factors that can apply! :( I will try reducing my basal (about half?) an hour before I start and then bring it back up probably 15 minutes before ending my workout and I'll let you know if that helps.

Thanks guys!

re: I used 7 strips at the gym tonight. Any ways to avoid going low?

sjwprod — Sat, 30 Jan 2010 06:32:57 GMT

Check what you have on board as active insulin, Basal or Bolus within four hours before you start exercising. In my experience, suspending your Basal less than an hour before intense activity like running will require a bolus post activity because of the reduction in active insulin for four hours hours after suspending the basal.

If I do aggressive and lengthy activity like running for > 35 min and start with a BG of +185, my BG sill rise. It is a chemical inevitability because of the changes in physiology during the longer activity.

The trick on basal is to reduce (temp basal) it about an hour before you start the activity and then bring it back up about 30 min. before ending the activity. This has worked great for me on 2 to 6 hour bike rides and 45+ min runs in the summer.

re: I used 7 strips at the gym tonight. Any ways to avoid going low?

ginny — Mon, 25 Jan 2010 01:05:59 GMT

I totally understand your frustration! I aim for a blood sugar of around 180 sometimes higher, before I go for a 30-45 minute run. I am not sure if this is the best idea, but it is so frustrating if you have to stop because of your blood sugars rather than being worn out. As for the protein snack - I drink a whey protein shake when I lift weights. There are some with no added sugars, and very little carbs. Hope that helps a little!

re: I used 7 strips at the gym tonight. Any ways to avoid going low?

Keith221 — Thu, 21 Jan 2010 15:55:36 GMT

Not much of a thought, but how about putting pump in S sometime before class. I do MDI and find I do better that way, start a little high??