Sick of diabetes

Forum Post: RE: Feeling really frustrated and disappointed!

Red Maxwell — Mon, 11 Feb 2013 23:02:00 GMT

Daisy, The most frustrating part about diabetes is that you can do everything "right" and still go high. In the end, there are only certain things that we can control. So you have to remember not to beat yourself up over the factors you CAN'T control (For example- if I ask you to close your eyes really tight and modulate your adrenaline levels, could you? Nope. Me either).

I'm glad your doc has helped you recalibrate your pump settings. We've had to do it countless times as our daughter has grown, because hormones, growth spurts, athletic seasons all change from year to year and month to month. It's good to keep changing your diabetes regimen because your life will keep changing too.

We've all been there and understand that you're doing everything you can to stay healthy. You are not your BG number. And for heaven's sake, make sure you don't fall into the trap of blaming yourself for a high number when you do your best.

Forum Post: Re: Feeling down?

Christina — Wed, 30 Jan 2013 05:57:00 GMT

Hi Amber, Blogging can be a great way to express yourself and sort out all those feelings that come with T1D. Keep it up! :)

Forum Post: Re: Frustrated over the little things..

Victoria — Thu, 15 Nov 2012 00:02:00 GMT

It gets so frustrating! I feel like my family doesn't understand and that I kind of freak them out when I start crying. I hate not knowing why I get so upset. Thanks for being so supportive.

Forum Post: Re: When your friend...

Elie — Thu, 11 Oct 2012 01:45:00 GMT

I have food allergies (casein, whey, tree nuts, mustard, red meat, eggplant, shellfish etc) as well as type 1 diabetes. Sometimes I wonder, which one would I rather get rid of, that is, if I could only get rid of one? And sometimes I think, well, that's obvious the diabetes! And others I think, no, the allergies! Easy! The truth is, I've ended up in the ER for both. Anyway, to get to the heart of what it is you're expressing, people shouldn't really be comparing diseases/conditions/disorders that are soo so very different, ESPECIALLY when they're talking about diseases/conditions/disorders they know NOTHING about! Rant over. Out.

Forum Post: Re: High Blood Sugar Making Me Sick... Literally

jennagrant — Tue, 09 Oct 2012 15:17:00 GMT

We all do dumb things sometimes. I spent my teenage years with A1cs of 14+ and went to the hospital a couple times as a teen and in college.

Stop feeling judged by your doctor, parents and glucose meter. Your pancreas doesn't work and so perfection isn't possible. But don't be dopey and skip your insulin for hours either. If your blood sugars are lower you will have energy and feel better. Plus highs give you bad breath and make you look pale and yucky.

Once I stopped seeing the meter as a judge and just saw it as something that told me to take insulin or eat, I didn't dread testing and it made it easier to have better blood sugars. Wish I could have figured that out sooner and not wasted so much time.

Are you pumping or taking shots now? What is your insulin correction factor?

Try to avoid highs, but when they happen take care of yourself and you will be okay. Jeff gave good advice in getting your blood sugars lower overall.

Take care and let us know if you have questions or need encouragement. -Jenna

Forum Post: Re: A Bizarre Idea About Hunger

Emily Petit — Fri, 10 Aug 2012 13:06:00 GMT

I like the book a lot. I got it from the library. :) Rockin'. And def reminds me I'm not the only one who has weird feelings about food.

Forum Post: Re: diabetes doesn't let me be who I really am...

Emily Petit — Fri, 20 Jul 2012 12:27:00 GMT

I think diabetes does bring out parts of a person you wouldn't see otherwise. It's like, a major component and you have to learn how to balance this major component of your being with all those other parts. And I wouldn't change that wild ugly journey for anything, because I know diabetes can only add to what I already have. It's not like different aspects of a central person are clamoring for space and take over as soon as there's a vacancy ... it's not replacing or taking away from anything else. :)

Forum Post: Re: People are not getting more understanding!

Emily Petit — Sat, 14 Jul 2012 21:15:00 GMT

OH MY GOD I TOTALLY KNOW! Rant all you want. I love that it's not just me with ALL these feelings!!!!!!!!!!!!!!!!

Forum Post: Re: How I feel about Type 2

Emily Petit — Sat, 14 Jul 2012 21:13:00 GMT

I often feel super guilty for some of my frustration with diabetes-related ignorance, and all it has to do with type 2, coming out as anger toward INDIVIDUALS with type 2. But I am soooooo glad I'm not the only person out there who feels this way about type 2!!!!

Forum Post: Re: "Grow up and stop crying"

DragonflyHope — Sat, 14 Jul 2012 06:29:00 GMT

Anne,

So sorry to hear about you mom not understanding. I was lucky enough to grow up with my dad having diabetes and we play a special game called what's your favorite thing people say, his is " you need to take better car of yourself" I like to tell people to balance a plate on a wooden stick and then try doing 5 at once without breaking a plate. They really just don't understand, and never really well. But as I've learned there are some people who are willing to try. My boyfriend has learned a lot, dealing with the moods that come with the sugar levels is one of the hurtles he has excepted and hands better than I could imagine. He makes me drink water if I'm high, even if I don't want to. He's learned to tell by the tone I talking in that something's wrong. And reminds me that I'll be ok. And I know when your high you just see organs failing and loosening your eyesight and all these horrible things but you just have to remind yourself that you are handling it and will do your best. Even with having my father it's pretty frustrating out there. But this seems to be an amazing place. Full of people who understand. If you feel like your mom could understand an example tell her something like this ( one of my person fears) - I want to have a baby some day but if I don't do well now it will effect me then. So even though it doesn't seem like much at the time cause you look fine. Too many numbers like that can add up and effect your future, and that's pretty scaring - unless of course if you have a crystal ball.

Good luck, hope that wasn't too long : D

Forum Post: Re: apparently diabetes describes me :(

Victoria — Sun, 24 Jun 2012 04:37:00 GMT

Having diabetes is not fair period. It is worse when that is what "becomes" you. The first struggle is not seeing yourself as a diabetic. The second struggle is not letting others see you as such; and if they do, not let it affect you. I know it is more difficult coming from someone so close like your mom. But you have to stay strong. Find a good support system like friends and other people here who are not just diabetics, but people with similar perspectives!

And like those above have suggested, let them know how you feel. Impose your perspective on them. You are no different except you can't drink regular soda :)

Forum Post: Re: Lantus vs. arm

Alyssa — Wed, 16 May 2012 16:59:00 GMT

When I was on lantus, I have found that my leg and backside hurt the least! :) Hope this helps!

Forum Post: Re: Why?

Coravh — Wed, 09 May 2012 14:55:00 GMT

I'm not sure what you are talking about. Are you waiting for a transplant? I know that my transplant center will not transplant anyone with an active addiction. These folks, once they are in control, then have to wait just like everyone else on the list. To tell you the truth, I got a lot of grief about needing a kidney. I had people blaming me for not having taken good care of myself and felt that I didn't deserve the transplant. I did take good care of myself given the different technologies available when I was diagnosed (1966). Sometimes bad things just happen.

Forum Post: Re: WHY DO I FEEL LOW WHEN I'M HIGH?!?!?!

BelindaD — Wed, 02 May 2012 09:28:00 GMT

I've been having the same thing happen to me several times since last week: I'm shaking and feel kinda dizzy and when I check, my results have been anywhere between 125 and 195! What's all that about??

Forum Post: Re: I hate people questioning my judgement!

Sarah — Fri, 20 Apr 2012 13:54:00 GMT

I totally agree! I also agree with Jenna ^^ educate those who care enough to learn exactly what T1 is and those who don't want to learn, or think they know, ignore them. You can't change someone else's ignorance!

Forum Post: Re: Hard with lows

Victini — Tue, 17 Apr 2012 01:57:00 GMT

Dear Jennagrant, I know what you are supposed to do. And the school nurse and I do it 30 min.

Forum Post: Re: You know what bothers me?

Morbid Poet — Thu, 12 Apr 2012 01:22:00 GMT

I dont deserve their sympathy. I can handle myself just fine.

Forum Post: Re: I hate, hate, hate health insurance

Jacob Ray — Sat, 17 Mar 2012 06:12:00 GMT

Seriously, it they're worried about the bottom line there company is covering, they should look at reports of stress, what causes it, the implications on management and how much more that management is going to cost them in the long run vs. the healthy control of an individual! ;lakjsdf ;alskdfj

-with light and love<3

Forum Post: Re: Why I Hate Telling People

Jacob Ray — Sat, 17 Mar 2012 05:32:00 GMT

<3 Hey guys, I just found this site...*insert time thinking* yesterday! :) It's been a blast stumbling upon all of the issues that I deal with from other people, not that i enjoy anyone having to deal with this ish, but to not be alone, ...it's really nice. :) I've had diabetes for the last 15 years, I was diagnosed when I was 7. last november, a MAJOR blessing came my families way, my dad's employer offered him health insurance that could be handed down to me! he'd been paying out of pocked to health net for the last 14 years. any who, transitioning to kaiser left me with a new type of insulin than that which i was used to. I was on, and super aware of how to work humolog into my day, how it would react with me, and what-not. Now, I'm on novolog. a "generic" type of insulin. I'm glad, so happy for him, my dad, for him to be saving so much money each month. However, rediscovering my ratios has been a pain in the butt...to put it lightly. I hate being high. I hate being low, and over eating to only come up high again, I hate the roller coaster ride.

I love when after being high, my sugar finally drops into it's range. I've discovered my carb ratio. I'm still working on my correction ratio, and the timing the insulin acts in, but I'm making progress.

I hate being in the middle of something i.e. this, and having just gotten back from the bathroom, having to go again! MAN oh MAN! <that last one is at least laughable. :) Keep it classy Juvenation?

Forum Post: Re: sick of diabetes

PaytonKroymann — Sun, 26 Feb 2012 16:48:00 GMT

Don't say I hate my life tho. If you need help I will for sure talk to you. Red Maxwell is right. I have had this for 6 years and I hate it. I just relax myself before i take a deep breath and count to ten. It helps I have done it ever since.