Parent AND Child with type 1

Forum Post: Parents of 10-18yo T1 children - I NEED YOUR HELP!

Ashley — Fri, 25 Jan 2013 19:26:00 GMT

Hello!

I am a graduate student conducting research on the relationship between nutrition counseling & blood glucose control in type 1 adolescents and teens.

If you are the parent of a child between 10-18 years old with type 1 diabetes, I need you!

The link below will take you to a short survey -- it should take no more than 5 minutes and will greatly help to identify whether nutrition counseling helps children maintain their BG levels.

SURVEY: http://www.surveymonkey.com/s/QH57FGQ

If you have any questions, feel free to contact me on this site or via e-mail (msu-agilles@student.mcneese.edu).

Thank you in advance for your participation!

-Ashley

Forum Post: RE: whatever happened to my diabetes-compliant daughter??

jennagrant — Wed, 03 Oct 2012 19:35:00 GMT

You sound like you're a really good mom and it's cool that you're helping your daughter learn to live with diabetes long term. I hope you and your daughter have a good talk and that it helps her feel not so frustrated.

All of us have to figure out how to compromise between ideal diabetes management and living a normal life. We all have different personalities and different strengths and weaknesses.

Often doctors aren't realistic in their expectations. If you ever feel criticized by a doctor, just have confidence knowing that you're doing the best you can in balancing everything. Highs and lows happen when your pancreas doesn't work.

Take care. -Jenna

Forum Post: wants to eat more at bedtime snack -what to do?

prayn4cure — Sat, 09 Jun 2012 04:39:00 GMT

my 6 year old duaghter was diagnosed with type 1 few months ago. She is on multiple injection. She used to eat 20-25 carbs as a bed time snack. lately she has been wanting to eat more~ about 40 carbs? what should i do? increase the humlin or give her some humlog in addition to her regular humlin?

Forum Post: New mom diabetes blog! www.everydayhighsandlows.com

everydayhighsandlows — Mon, 09 Jan 2012 18:28:00 GMT

Hi everyone,

I started a blog on raising twins. One of my guys has Type 1 diabetes and one does not.

I would love for you all to come check it out.

I keep it pretty light and easy to read because, let's face it, our days can get pretty heavy at times.

Feel free to become a member and/or leave a comment. My readers would love to hear your story too.

The website is www.everydayhighsandlows.com

Thanks,

Shari

Forum Post: Re: Type 1 Emergency Planning

Vanessa — Wed, 24 Aug 2011 17:54:00 GMT

Thanks Jenn,

Always nice to hear from another T1 who has experience with this. I just had to follow some sort of guideline and started to talk to my son about it yesterday, since being on the East Coast, especially in DC, nothing ever happens, so just took me back a bit.

It was great talking to my son about it and noticed that he seemed to appreciate a plan as well! So we worked it out and now will be using this plan from now on and thought others could benefit.

I am happy to hear that you were fine (& that the fire didn't make it's way to your house) with your experiences, I think it's wonderful you know how to balance it out like that & hope that one day my son will as well. Also thanks for the tip, we have a second natural disaster (hurricane) coming later on this week and have already stocked up on supplies, but GOSH DARN IT.... I did forget the extra test strips so your a life saver!

Many thanks & have a good one!

Forum Post: Stop Juvenile Diabetes

Vanessa — Tue, 19 Jul 2011 19:45:00 GMT

Hi Everyone,

I hope everyone's well, with normal BS numbers! I am a mother of a 10 year old with Type 1 and my son & I have set up a Facebook page for parents/ and or those living with Type 1 to join together, answer each others questions and just be there for one another. I know this page is WONDERFUL for that as well, I just seem to gravitate to Facebook more often. For me it's been therapeutic and for my son, it just shows that he not the only one.

I had seen a spike in fans and hope to gain more, as more and more people like my page, more and more seem to have questions that I am not always the best equipped to answer. I hope one day for our page to be a spot where people can come ask questions or just post whats going on in their lives and we as a group can be there to uplift or answer any questions people may have, especially those who are newly diagnosed and or parents who just need a lil encouragement for their newly diagnosed children. Coming from that situation myself, I know the heartache and confusion that causes and if I can just help one parent or newly diagnosed person through that difficult time then I will feel good about that.

So I hope you will connect with us, share your stories and help out others in our quest for a cure & understanding: Facebookpage http://www.facebook.com/pages/Stop-juvenile-diabetes/108065249284832

Forum Post: Re: How common is it for a parent AND child to have type 1??

opop — Thu, 09 Dec 2010 13:19:00 GMT

This is an interesting post, Candace...I have a child with type 1, also a brother and a cousin, but don't have it mysefl. However, i am doing research in the area of diabetes (type 1) and am finding, to my surprise, that a lot of parents DO have it as well as their kids having it, so I have actually had to change my eligibility criteria because of this..

Forum Post: Re: Just asking...

Jewels — Fri, 22 Oct 2010 22:18:00 GMT

I give Emma (age 8) age based responsibilities- she was diagnosed at age 5. Most of her peers are much more immature at school and I find living with diabetes makes you grow up quickly. The level of responsibility and pressure to take care of themselves can weigh heavy on children. Somedays Emma does more than others and I always follow her lead. She doesn't change her pump sites and I'm just fine with that. She has many responsibilites with her disease at school and I try to balance that at home. She will have many years with this disease to come. Child first, diabetes second- that is my viewpoint. Anyone who judges you truly has no idea what it is like to have diabetes and also to have a child with it. People think its easier for you sometimes because you have it. I say judge her maturity and her stress level and go from there.

Forum Post: Diabetes Binder

Jaimie Rosaile Chaffin — Fri, 01 Oct 2010 23:20:00 GMT

I have posted this in other place's but I thought that this time I would go to the parents and children with type 1 diabetes and ask what u parents put in your kid's diabetes binder or your own diabetes binder what is in your kids and your's diabetes binder if u have one?

Forum Post: Peer Support for Adolescents with Type 1 diabetes

mrcaswell — Thu, 10 Dec 2009 01:39:00 GMT

Are you an adolescent (12-16 yrs old) with type 1 diabetes?
Have you also been diagnosed with type 1 diabetes for 6 months or more?
Are you a parent of an adolescent with type 1 diabetes?
Would you be interested in participating in a project on peer support?

If you answered YES to any of these questions, please participate in a project examining peer support for adolescents with type 1 diabetes.*

Hello, my name is Meghan Caswell-Pohl and I have been a type 1 diabetic for 14 years. I am a student at Central Michigan University and am interested in learning how to help children and adolescents with diabetes. My project is trying to measure the amount of peer support that adolescents with diabetes receive. You will also be asked to nominate a friend to participate in the study. All of your information will be kept confidential and in a secure, locked storage unit. As a token of appreciation for your participation, you will receive a gift certificate.

If you are interested in participating in the study and you are a/an…

Adolescent with diabetes: Please share this posting and your interest with your parents. Your parents will also have to give their permission for you to participate in this project.

Parent of adolescent with diabetes: Please share this posting and your interest with your son/daughter with diabetes. In addition to your consent, your son/daughter will be asked to give their assent to participate in the project.

Please contact Meghan Caswell-Pohl at mrcaswell@gmail.com with the following information:

· Subject: Diabetes Project

· Adolescent name

· Parent(s) name

· Contact email and/or phone number

*This blog does not guarantee participation in the project.

Forum Post: Re: Boy I feel good today.

Laura — Sat, 05 Sep 2009 13:55:00 GMT

I am three years into it (my daughter has had it for 3 and I have had it for 26 years) and I was sooo shocked when she got it- still am a little bit-

Advice on how to deal with difficult situations: well, one day at a time is very good,

talk to others
stay educated
don't blame yourself or anyone
have a good doctor for your child and you
talk to others
take care of yourself too!
cry
I have a hard time of not being perfect about my diabetes and now my daughters which I am not!!! so I have had to learn to forgive myself and not be so hard on myself.
keep going everyday no matter what
Don't let diabetes stop your child from doing any sport they want to do
get others around you trained on how to care for your child!!!!!!! classes at your local JDRF or hospital
hug your child

Also, for me personally, praying and finding strength in my faith has been key.

I just discovered this website a couple of months ago and it has been helpful to hear how others deal with it and get moral support and advice. You know, thinking about it, I was still pretty numb about it for at least a few months and my head would spin.

keep us posted.

Laura

Forum Post: Re: anyone have sleep issues from your type 1 and your child's type 1??

Amie Meenk — Thu, 16 Jul 2009 00:38:00 GMT

Oh I can relate. I find on the rare occasion I actually fall deeply to sleep my CGM goes off and wakes me up, but besides that I really never get a sound sleep. I don't worry about myself so much as I do my daughter. she is 4. If her Bg is normal before bed then i am worried she is going to crash while sleeping. If she was higher than I'd like her to be then i worry about what it is doing to her body, and what if she wets the bed, and all those good things. To make matters worse I also have a newborn that I am always listening for and a husband that works 3rd shift. i find myself hearing everything from a dog a mile away to my daughter breathing down the hall. i think this is a combination of being a mom and also being diabetic. I also find my mind thinking about things I could be doing to maybe get her a little bit closer to where i want her target numbers to be, even though her last A1C was 7.1 so I must be doing something right. You are not alone though, I find myself exhausted in the morning and very rarely ever getting a good sound sleep. Maybe someday :)

Forum Post: Re: Frustrating lows and guilt

Amie Meenk — Thu, 18 Jun 2009 22:28:00 GMT

Jane

I think my first words when i found out Courtney was diabetic was pretty much the same as your dad's. I have even had others say that to me and I must agree. At least i know how to handle this and what to expect later on in life. deep down I know it was just the hand we were dealt, but at times i just become overwhelmed with it all. Thanks for your kind words and please keep in touch.

Amie

Forum Post: Letting Go: When Your Diabetic Child leaves for College

Ann Bartlett — Fri, 22 May 2009 02:56:00 GMT

This post is on Healthcentral.com/diabetes, by Dr. Fran Cogan, MD, she is head of pediatric endocrinology for Children's National Medical Center in Washington DC.

It is May and our high school seniors have received those thin and fat envelopes determining their educational fate for the next academic year. Many will be living on their own for the very first time and have to become independent without the immediate support of parents. This task of "letting go" is a major developmental milestone for both the child and family members, especially parents (and even more typically - mothers). This transition is exceedingly tough and emotionally stressful. It is hard enough to send your child to a new environment away from the nest, but it is even harder to leave your child with diabetes in the midst of a bustling college dormitory! I certainly was no exception. After bidding farewell to my then 18-year-old son in the middle of the Arts Quad of Cornell University, I began sobbing and did not stop until arriving home 6 hours later. That first month was extremely difficult.

Now, add the additional layers of complexity in children and teens with diabetes, in which the family has played a major supportive role for many years. MAJOR STRESS!

1. Who ensures that your child is checking blood sugars at least four times/day?

2. Are they bolusing insulin for their carbs correctly?

3. Are they correcting blood sugars?

4. Do they have rapid acting carbohydrates available at all times?

5. What if they go low overnight?

6. Who is going to check their blood sugars at 3 am? (I know that parents will want to, and would if at all humanely possible! Maybe a remote blood glucose meter?)

7. Does that Resident Advisor know how to administer glucagon?

8. Who will check if my teen drinks alcohol and goes "low?"

9. What if they run out of insulin and forget to get refills?

10. Etc., Etc., Etc.

I am sure that parents could add at least 100 more concerns to this very short list. And, you do have merit in your anxieties about your young adult. So, how do the child, siblings, and parents emerge from this major transition without having severe emotional repercussions?

I have written past blogs about Developmental milestones in infants, toddlers, elementary schoolchildren, and adolescents. This particular developmental milestone (leaving the family environment) occurs as your adolescent becomes a young adult. How does one prepare for this disruption?

As with any change in family dynamics, it helps to be informed about "what to expect" in terms of child development. It is important to be prepared ahead of time so that reactions are not unexpected. Take advantage of your diabetes team to help prepare your young adult (and your family) for this major transition. As my students go through their senior year in high school, I begin to discuss different issues during each of my diabetes follow-up visits (with or without parent in the exam room):

1. The choice of the best college fit for their unique needs and personalities

2. Barriers that might occur as they move from home to college

Here are some other topics she has written on:

Getting your kids safely through airport security

Diabetes and Insulin: Types and Application

Diabetes treatment and development: Adolescence

Diabetes and PlayDates

Forum Post: Parent Blog: another Item to your daily list

Ann Bartlett — Fri, 22 May 2009 02:42:00 GMT

This blog is posted on HealthCentral.com/diabetes.

Beth's blog:

All parents have a "Do You Have" list of items that we bark to our kids as they rush out the door for school each morning: "Do you have your backpack? Lunch? House key? Shoes? Homework? Gym Clothes? History project requiring 1500 popsicle sticks that we stayed up to 3 a.m. to finish? How about a hug?"

If your kid has Type 1 Diabetes, the list continues: "Do you have snacks? How many? Glucose tabs? Cell phone? Glucose monitor? Insulin pen? Extra needles? Alcohol wipes? Hall pass for the clinic? Now, how about that hug?"

Yet when your diabetic child walks out the door, onto the bus and off to school, the real worry begins. You worry about if your kid has gym and if she'll be running the suicide sprints that always dip her blood sugar. Or about the science teacher that asks your child to leave the classroom and go to the clinic to check his blood glucose, meaning he'll miss more of his lab work and fall even further behind. Or that militant hall monitor who won't let your daughter go to her locker for her glucose tabs because she forgot a hall pass at home, even if she's displaying her medic alert tag. The list is endless and makes parents of a diabetic kid weak with apprehension.

To read more click here.

Forum Post: Re: What's the best way to teach our type 1 children?

Lesia — Sat, 02 May 2009 16:52:00 GMT

Hi John,

I am new to this site and happy that I stumbled across it....So many sites gear towards either an adult with Type 1 or a child with Type 1 but this is the first I have found that has a group with both parent/child with it. I'm not glad were here but glad I have found support from others who are going through the same thing.

It's interesting.... I too am Type 1, have a father with Type 1 and my daughter was just diagnosed 2/08. We all developed it at the same age of 12. I was devastated when my daughter was diagnosed. I felt guilty and sad. I ask my doc beforehand and was told I had a slight increase that my child would develop diabetes....I also had it in my mind that since my father had it and I had it that it would most likely skip my children.

It can be overwheming as you know taking care of yourself along with your child but we are adjusting. She is currently on multiple injections and we are trying to persuade her to a pump..she is scared of the infusion sets. I have only been on a pump for about 5 years and love it. Are you both on a pump?

Thanks for listening...take care.

Lesia (Lisa just spelled different)

Forum Post: Re: The club I never expected to join

Lesia — Sat, 02 May 2009 02:47:00 GMT

Hi Katie,

Your first paragraph I could have written.....

I too am Type 1 (diagnosed at 12) and have two daughters (17 & 13). I also consulted with my doctors before I became pregnant and was also told that the risk of me having a child with type 1 were just slightly higher. I guess I had it planted in my brain that my children would never get diabetes or believed the old wives tale of skipping generations. Anyway, my worst nightmare came true.

My youngest daughter was diagnosed 2/08. I was devastated and couldn't believe it. I felt guilty that I didn't reconize the symptoms earlier but the signs were not unusual for her. Even as a toddler and young child she would drink alot so I chalked the thirst up to that. She was not eating well...but she was picky eater. Had headaches....but thought it was sinuses. It wasn't until we went to a Jonas Brothers concert and my daughter bringing up Nick Jonas having diabetes that it triggered me to check her. It was as if a light bulb went off and I was like....why didnt' I think of this earlier. I blamed myself...and felt very guilty.

Luckily, she was diagnosed before she became really sick and her symptoms only showed up a few weeks prior. She is adjusting but as you know it gets overwheming at times taking care of yourself along with a child. Currently she is taking multiple injections but I'm trying to persuade her to go on a insulin pump.

Just wanted to say I'm not glad were here but glad I found there are other people in the same situation so we don't feel so alone.

Take care,

Lesia

Forum Post: Re: New Diagnosis??

Jewels — Sun, 29 Mar 2009 17:54:00 GMT

Absolutely, we are here or you. I have had type 1 for 26 years and Emma my 7 year old was diagnosed 2 years ago. Fire away with questions, emotions, anything you need! Just know it does get easier. It was very very difficult for us after Emma's diagnosis so I can appreciate all you are going through.

All the best,

Jewels

Group: Parent AND Child with type 1

Anonymous — Thu, 15 Jan 2009 15:38:00 GMT

A group for parents with type 1 who have children with type 1.

Forum: Parent AND Child with type 1

Anonymous — Thu, 15 Jan 2009 15:38:00 GMT