Newly Diagnosed - Recent Threads

2nd aniversary of being diognosed

Carl — Thu, 11 Apr 2013 14:53:14 GMT

This is now my second year since being diognosed with Type 1. Doc says I am still honeymooning and that I dont need to take any insulin or meds right now. My a1c is low 6's. I guess I am lucky so far? I am 35 now. I completely changed my diet and excercise habbits when I was diognosed and feel the healthiest I have ever been in my life!

Anyone else have similar honeymoon experiences?

thanks for reading!

8 year old diagnosed

psu1997 — Fri, 22 Mar 2013 01:13:30 GMT

My son was diagnosed with Type 1 on Sunday, March 17th and his sugar is perfect in the morning but gets higher throughout the day. His doctor lowered the carb factor from 18 to 15. I still don't know why it is so high. Any help as to why would be great. I am a parent and I have so many questions and concerns as I watch him day and day.

New Diagnosis

hcarter4 — Fri, 04 Jan 2013 03:39:54 GMT

My 16 year old daughter was diagnosed with type 1 diabetes on Dec. 27th 2012. She has been released from the hospital and they are still having us call in blood sugars and making small changes to her insulin dosages. One thing I have noticed is that she is hungry all the time and seems to constantly be eating. She sticks to 15 carbs for her scheduled snacks, but she is eating other NO carb snack at a bunch of other times. I was just wondering is there is a medical reason why she would be so hungry all the time. She's actually been eating more now than before she was diagnosed. I just want to know if I should be concerned.

Newly Diagnosed Help

Renee Gerber — Thu, 12 Jul 2012 20:30:42 GMT

We have been diagnosed for 1.5 years. I remember what it was like to explain to family members and parents of my daughter about diabetes. Because of the constant repetition, we created the Diabetes Champ Chart. We just launched the company last week at the Friends for Life conference in Orlando.

If you are newly diagnosed and need some much needed help, go to www.DiabetesChamp.com

Renee

T1D anniversary

Ursula Thompson — Sat, 07 Jul 2012 02:28:55 GMT

Tomorrow will be 5 months since my son was diagnosed with T1D

wants to eat more at bedtime snack-what to do?

prayn4cure — Sat, 09 Jun 2012 14:34:37 GMT

my 6 year old duaghter was diagnosed with type 1 few months ago. She is on multiple injection. She used to eat 20-25 carbs as a bed time snack. lately she has been wanting to eat more~ about 40 carbs? what should i do? increase the humlin or give her some humlog in addition to her regular humlin?

New at this ...

Amie Renae — Wed, 28 Mar 2012 00:57:35 GMT

i was diagnosed a month ago, and it's still all very hard but i get through, we all can because we have eachother right? <3 (:

Poison

Carl — Tue, 07 Feb 2012 03:25:01 GMT

Crazy question here, I was diognosed about a year ago with type one. Every since my ex moved out I have been getting way better. My meter says my 30 day average is 118 now with no lows lower then 87.

Could it be possible my ex was poisoning me? (I know, I am reaching here)

No low BS

Carl — Thu, 19 Jan 2012 15:59:09 GMT

I was diognosed about 10 months ago with type 1 and had an A1C over 12% then. Now I have an A1C under 6.5% and my BS is usually between 90 and 200. I only take 15 units of Lantis a day.

What I am wondering is why my BS never drops below 90 or why I dont experience the low BS like most type ones have? Do other type ones have this?

Dont get me wrong, I am not complaining, but just curious.

thanks all!

I love this site.

newly diagnosed

dakotadraper — Sun, 27 Nov 2011 18:41:06 GMT

i was diagnosed a year and 26 days ago does that count as newly diagnosed?anyway im new to juvenation im 14 and looking for more type 1 diabetic friends.

9 yr old diagnosed this past week

rhooker — Sun, 13 Nov 2011 00:38:32 GMT

My son was diagnosed with Type 1 this past week. We are in the early stages of figuring out insulin doses and trying to level off his blood sugar counts. This is still very new and overwhelming.

I'm wondering if there are any journals, websites or apps you'd recommend for carb counting and keeping track of blood sugar in one place? The log we got from his endo. is not very user friendly.

Thank you!!

Autistic son newly diagnosed HELP

JodyO — Sat, 05 Nov 2011 19:47:45 GMT

Hey folks! My Son Ian has been just diagnosed with diabetes they are leaning towards Type 1 but not ruling out 2

Is there any videos or sites out there that might show him at his level Age and mentality levels? Kind of a cartoon type explaination or something easy to understand . He is 13 years old and I just want to have him understand why we have to change everything

Thanks

Jody

Approaching our 2nd month anniversary

Christina Ruibal — Sun, 14 Aug 2011 02:18:33 GMT

My 8 year old son was diagnosed on June 16th. To say it has been crazy would be the understatement of the century. I have been very hesitant to reach out to any group, chat on any network, or blog through various support sites because i simply do not want to accept this. What is so disorienting is how seemingly unfazed he is, while i am broken and brittle to the world. Is this normal? He has made very little fuss about the needles, diet, or whatnot. On one occasion, he declared (with a true matter-of-fact tone) that being sick sucks. ??? i am bracing for a real sense of sorrow and anger or pity, but NO. It makes me feel as though i am the one blowing this out of proportion. Certainly i am not. Or am i?

Anyone with a toddler?

pomchioz — Mon, 08 Aug 2011 02:58:01 GMT

My son Noah is 22 months old and was just diagnosed on Wednesday. I was wondering if anyone out there has a toddler that has been diagnosed recently and how things are going?

Honeymoon period

Angel — Wed, 15 Jun 2011 23:41:06 GMT

My son Joe is 10 and was diagnoded on March 7, 2011 he has been honeymooning ever since almost to the point where I question whether or not he has diabetes. I know that he does, but it is crazy! They have told me to be careful of falling into a trap of letting him eat whatever he wants becasuse one day it will all end and than what! Is it easier to manage after the honeymoon ends? We haven't mastered carb counting yet so they have us on an exchange program and a eating schedule and I hate it! I have been told that it gets easier, I sure hope so!

not even a month since i've been diagnosed

osujenn07 — Wed, 08 Jun 2011 23:07:16 GMT

Hi, i found out a little over 3 weeks ago that i have diabetes, Found out not too long after that it was type I, i have so many unanswered questions and worries, if you want to give me feed back that would be great!

So i have a son that is now 2, they never found gestational diabetes, And then this came on really fast and all of a sudden. So i mainly wanna know where does it come from, i know that i didn't get it because of something I've done but it's hard not to feel like that when it just happened all of a sudden.

Iknow many people with D have had healthy happy babies, but what scares me is we were thinking about having another baby next year. What do you do if you have a few bad days and your sugar levels are wacky, will that cause the birth defects in the baby? how many days of high sugar would it take before birth defects happen?

Today i have the stomach flu or something and it really got me down all day, i just feel like my bodyi s just falling apart and that no matter what i do right now that i can't fix it. I was at my diabetic nurses office today and she told me to come back tomorrow if i still feel bad and try to see dr (he wasn't in today)

So on those days when you get discouraged how do you get yourself up and positive about your situation? Not to mention on top of already feeling like a failure today the nurse told me that i am a very good candidate for a pump in the future. Now i haven't even been diagnosed for a month yet, that's a scary thought!!!

I go see an endo July 5, should i just keep these questions til then. are they really good about explaining things well?

Thanks

Jenn, diagnosed May 19, 2011

Newly Diagnosed

SJR87 — Tue, 31 May 2011 20:44:49 GMT

I was diagnosed with type 1 diabetes in April. I was put into the hospital with keto acidosis. . My blood sugar was 388 going into the ICU. Now I am on lantus and humalog. I am 23 years old with depression and anxiety too. I have an amazing family but dealing with this is very hard. I graduated from college but barely. I missed two or three weeks of classes and fell behind in my senior seminar class. I will not get my diploma until I finish my paper. Before being diagnosed, I had every single symptom. I had lost 45 pounds during the last 8 months. Dry mouth and excessive water drinking was also a problem. I also had two major infections.

I wanted to connect with other young people who also have type one. So that is my story!

Just diagnosed 1 week ago

David M. — Fri, 20 May 2011 02:42:10 GMT

I was just diagnosed 1 week ago and well this isnt easy and well do any of you have any advice for a thirteen year old 8th grader?

my 1 year :'(

Natorama9650 — Mon, 02 May 2011 23:52:54 GMT

itll be my 1 yr anniversary of bein a diabetic on may 5th it doesnt even feel that long but i can tell u im gonna hate the world that day <333 ~nat

No one understands!

SnoopDawg1990 — Sun, 17 Apr 2011 19:59:52 GMT

I've had diabetes for almost six months now, and I am just now coming to terms with a depressing thought... no one understands what having diabetes is like! People think it's just something you're okay with, a change that your body and mind adjusts to quickly. But hey, it's not. Especially not as a 20 year-old college student! How do you deal with this? Any pointers?

Love,

Sandy

what could be going wrong?

bethymay — Tue, 05 Apr 2011 11:48:00 GMT

My son was diaognosed feb 2011. We have had great success at home, but at school his numbers are all over the place. It is very confusing, and frustrating. I am lmost ready to pull him out of school to homeschool him just to control his numbers more. This is something I don't want to do because we are trying to keep his routine as norml as possible. Any ideas?

RETAIN Trial for Newly Diagnosed Type 1s

Tracy — Thu, 10 Mar 2011 22:34:52 GMT

Did anyone see this post today about the RETAIN trial?

http://juvenation.org/blogs/jdrfnews/archive/2011/03/10/jdrf-clinical-trial-enrolling-newly-diagnosed-patients.aspx

A new clincial trial for newly diagnosed type 1s. Right now its open to 16-35 year olds (diagnosed within the past 3 months), and those who participate in Part I are guarenteed to get the study drug, ATT, as opposed to a placebo. Enrollment should open up to people down to age 8 in next few months. Might be worth looking into...

HoneyMoon

TJandKim — Mon, 24 Jan 2011 03:00:17 GMT

Ok so my son was dx on 12/27.....and no sign of a honeymoon, is all hope lost...He had a few days early last week when we was in range 3 days straight, and we thought he was on his way. Now the past couple days he has spent most of his days at the higher end or out of range...Any thoughts???

Clinical Trials

cpatton1283 — Wed, 17 Nov 2010 04:41:45 GMT

Is anyone considering a clinical trial for newly diagnosed Type 1 diabetics?

my 5 year old was just diagnosed

cath0617 — Sat, 02 Oct 2010 23:12:34 GMT

Hello,

My 5 year old son was just diagnosed 5 days ago with type 1 diabetes. It was such a shock!

3 weeks ago he fell and broke his arm and had to have surgery, pins, cast, etc. At this time he started to not sleep so well, and started peeing the bed on and off. Well it just so happened that he had a well visit this past monday and we mentioned the peeing of the bed. The dr took a urine test and his glucose was over 500 and he sent us right to the ER and sure enough he has diabetes. We caught it very early.

I understand all the math and equation part of this but the problem I am having is the snacks between meals. It is almost impossible to find snacks for a 5 year old that are under 5 carbs! If anyone has any snack suggestions that are under 5 carbs I would really appreciate it!!! thx