Friends and Family

Forum Post: Re: Coping with the anxiety of being a "type 3"

hpark — Tue, 04 Jun 2013 15:39:00 GMT

Well I'm glad your husband was there to help! Thanks again for your words. I'm feeling better about my upcoming trip and my mom is seeing a new endocrinologist next week.

Forum Post: Re: In a Diabetes Funk!

norwaymama — Mon, 18 Feb 2013 02:52:00 GMT

Hi everyone,

Thanks for your replies and kind words. It helped so much just knowing that there are other people out there that really understand where I am coming from. Some good news is that Noah's numbers have been really great lately. The weird part is....we haven't changed a thing! That is just the frustrating part about this disease I guess. I'm just going to have to resign myself to the fact that sometimes it just does not make sense!

I tried to make some changes that I will think will help with my stress level some and not feeling so burdened all the time with responsibility. My husband is going to be "in charge" after school and on the weekends. Of course I will be there to help but at least he will have to be the one keeping to the schedule and planning all the "what next's". I am also trying to find a time to exercise. Even if it is a short amount of time at first I am hoping it will help to clear my head. I have also decided to see a counselor for awhile to just talk some things out that I have been bottling up for too long. I am also planning a weekend getaway with some girlfriends in the next month or so.

So, while things are still not 100% I am at least feeling a little better and maybe a bit more optimistic that things can and will change.

Thanks for the support!

Bethanie

Forum Post: BLOGS ABOUT THIS

Ashley — Tue, 04 Dec 2012 21:06:00 GMT

I have posted many blogs about friends and family regarding diabetes on my blog

Hey there. My name is Ashley. I have been Type 1 Diabetic for 4 years now. I have a blog that normally revolves around diabetic topics and I would love if you would read some of my posts and give me some feedback. Also, I am asking for suggestions for topics! What do you want to hear about?! :) Please leave comments.

Here is the link to the blog: www.iamjuvenated.blogspot.com

Forum Post: Have you been shy to help raise money for JDRF? Me too.

everydayhighsandlows — Thu, 04 Oct 2012 15:49:00 GMT

Come read my new post about my journey to help JDRF fight for our loved ones. Hope it inspires someone out there too! Www.everydayhighsandlows.com

Forum Post: Re: They just don't understand!

Angie — Tue, 21 Aug 2012 02:33:00 GMT

Jennagrant - 100% right on!!

Forum Post: Re: I can't believe this happened...

jennagrant — Mon, 13 Aug 2012 14:54:00 GMT

Those are crazy odds. But you are NOT the reason your friends developed diabetes.

A person has to have the genes from either the mom or dad to develop type 1. Doctors don't really know what makes diabetes develop, but they think there are some things that make it more likely. Certain races of people and individuals who live in far northern climates like Britain and Canada are more likely to get diabetes.

In the last few years the diagnosis rate of type 1 has increased too. There are lots of theories, but no one know why.

Forum Post: Re: dealing with teens

tlcgoodmom — Wed, 25 Jan 2012 19:10:00 GMT

I am so sorry you are going through this, however, I am so happy to hear you are as well. Makes me feel like I am not alone. I couldn't have wrote it better myself as to what I am going through with my 15 year old daughter. I am not sure what my job is. I do not want to nag her, but her decisions or lack there of, make me be the nag!! She has had T1D since April 2009, so we are going on 3 years. Then I look at it as in 3 years she will be on her own in college. She wants to go kind of far away from home which scares me to death. If she can't be responsible with it now, will she even be remotely ready in 3 years. I make the joke all the time that diabetes is aging me like a dog!! Hang in there, and happy to have someone to relate to.

Forum Post: Re: Having Diabetes

jennagrant — Thu, 12 Jan 2012 16:01:00 GMT

Hey Payton-

As you get older you'll realize that everyone has some issue they have to deal with. Might be health, weird personality, or a troubled family member. It is just a part of life.

Diabetes will bring challenges into your life, but it will also make you cooler in the long run. Having to deal with a difficult situation head on, figuring out creative ways to manage your blood sugar and fit diabetes into real life, and having to educate people about your disease will help make you into a well rounded person.

"Getting a Grip on Diabetes" by Spike and Bo Loy is pretty good. See if it's at your local library or if you can talk you mom and dad into buying it off Amazon. The diabetes info is pretty basic, but I think the authors found a way to deal with the frustrations and challenges of diabetes pretty well. One of them says having diabetes makes you smarter, more mature and better looking. =)

www.amazon.com/.../ref=sr_1_1

Forum Post: Research Study: Siblings of Individuals with Type 1 Diabetes--Please read!!

Julie E. Balzano, M.S.Ed. — Sun, 26 Jun 2011 16:44:00 GMT

My name is Julie E. Balzano and I am a fifth year doctoral student in the Counseling Psychology program at Fordham University. I am writing to ask for help in recruiting participants for my doctoral dissertation research examining the sibling relationship, empathy, and interpersonal problems among adult siblings of individuals with Type I diabetes.

I was wondering if individuals would be willing to help distribute an email about my study, post it to a blog you might have, or distribute my study flyer at any support group meetings or events you might have. And, of course, if you have sibling(s) and Type 1 it would be great if you could pass this information to your sibling(s). Study participants are the non-diagnosed adult siblings of individuals with Type 1, but the best way to get in touch with these individuals has been through their diabetic siblings.

Study participation occurs electronically, takes 20-25 minutes, and is anonymous. I have pasted study information below. Information can also be found at: http://siblingresearchstudy.blogspot.com/

Sincerely,

Julie E. Balzano, M.S.Ed.

***************************************************************************************************************************************************************

Participants must have sibling(s) who are EITHER medically healthy OR who have a diagnosis of Type I diabetes. Additional participation criteria include:

• Must be 18 years of age or older.

• Must have grown up in the same household with sibling(s).

• Participants may not have any serious medical conditions or developmental delays/ disabilities.

• Sibling(s) may not have any of the above conditions except for Type I diabetes.

• Sibling(s) must be alive.

Participation will take approximately 25-30 minutes of your time and includes electronic completion of one demographic information survey and three questionnaires. All participants will remain anonymous. To participate, type the following link into any web-browser and follow the directions:

https://www.surveymonkey.com/s/G3XW7KV

If you do not qualify, but happen to know someone who might be interested, I would really appreciate you passing this information along. Please feel free to contact myself or my dissertation mentor, Dr. Eric C. Chen, Ph.D., with any questions you many have. I thank you in advance for your cooperation.

Sincerely,

Julie E. Balzano, M.S.Ed.

Ph.D. Candidate

Counseling Psychology

973-818-0162

balzano@fordham.edu

Eric C. Chen, Ph.D.

Dissertation Mentor

Associate Professor of Counseling Psychology

212-636-6474

echen@fordham.edu

Forum Post: Re: Dating someone with T1

Ashley Kinstler — Fri, 10 Jun 2011 22:10:00 GMT

Also check out my blog about my life with type 1 diabetes. There may be some posts that could help you go about this.

www.iamjuvenated.blogspot.com

Forum Post: any advice for t1 son learning to drive

Mjk — Thu, 09 Jun 2011 01:47:00 GMT

my son just got his learner's permit to drive, but his blood sugars were so high that we couldn't hand him the keys! I'm so bumbed for him, and I'm wondering if any parents out there survived this period and how you did it...thx.

Forum Post: Re: Spouses

Laurel — Sat, 07 May 2011 11:43:00 GMT

Hi sarah. Don't know if you're still around on juvination but. I was just browsing and saw your comments... My husband is t1...22 yrs. He has only paid attention for the past 14 maybe. He is stage 4 we've had a couple scares .. High potassium can cause heart attack. His eyes... Some swelling and bleeders but so far so good. He insists hes doing everything right. I have my dots there :). But. Mostly he's scared. I think. The best thing we can do is pray and encourage I do my best to hold him accountable. And love him. Which is really hard sometimes :).

Forum Post: Re: Newly diagnosed daughter

rec1987 — Sat, 16 Apr 2011 06:35:00 GMT

Hi Ann, I too have a daughter who was dianosed at the age of 13 and she is 16 now. It has been a rollercoaster ride for us. She is doing well over all, but has hit that teenage stage and does not want to deal with it. she has scared us many times. But over all she is coping well. She plays several sports, and is involved with many out of school actvities. I find that it we can keep on a regular schedule with meals it helps keep her sugars in check. it is hard to do with all of her activiies, but I make sure she has some kind of snack with her at all times. It will never be easy, but we all can make it. with all of the support out there you will never be alone. Good luck.

Forum Post: I am T1 for 22 years. My little brother (he is 27 yrs old) was just diagonsed 3 days ago w/ type 1.

vicky1990 — Sun, 10 Apr 2011 01:11:00 GMT

Hello. My name is Vicky. I was diagnosed with type 1 22 years ago at age 11. I have two beautiful and healthy boys, ages: 5 (6 in June) and 17 months. I am also pregnant with our 3rd child. Due in September. I am on this blog because my baby brother was just diagnosed 3 days ago, also with type 1. I am shocked becuase I have 5 brothers and no one in my family, i.e. uncles, cousines, grand parents, parents, etc.... even has type 2, and now both my brother and I have type 1. I totally thought that my diabetes was a fluke and it wasn't hereditary and now I have to realize that it actually runs in my family, potentially affecting my little babies. Had I known this I may have not decided to have children of my own. Prehaps decided to adopt instead. Of course everything happens for a reason, hence the fact my lil bro was diagnosed 4.5 months into my last pregnancy, however I am terrified of this darn disease for him.

I have been very blessed for almost 23 years to have stayed as healthy as I continue to be. My two earlier pregnancies were great and I have no signs of complications from diabetes, albeit it has been a difficult journey dealing with this disease. Nonetheless, I have accepted and feel strong enough to deal with the disease myself. I just worry about it affecting others close to me. It feels like the walls are closing in. I know I am being dramatic, but I am MAD that it is 'spreading' amongst my loved ones. Ironically, just last week (prior to ever knowing or even thinking my brother would siffer from diabetes) my 5 year old asked me if diabetes was contagious and I told him no! He had nothing to worry about.

I just wanted to share my story and give hope and strength to those young girls/women hoping to live a normal future relative to good health and strong healthy pregnancies. It is more than possible, so long as you take care of yourself and accept the extra care your body needs.

Good luck to you all and best wishes!

Forum Post: MY BLOG CONCERNING TYPE 1 :)

Ashley Kinstler — Sat, 12 Mar 2011 13:48:00 GMT

www.iamjuvenated.blogspot.com

check it out :) make a blogger account and "follow" me, leave comments, and take the polls that change often at the bottom of my homepage!

have you friends and family read to learn about it!

Forum Post: Re: Diabetes and Dyslexia

JDVsMom — Wed, 09 Feb 2011 18:49:00 GMT

My son is only 5 and he is not LD (that we know of) so, I will give some suggestions for managing a younger child who can't carb count yet.

Carb counting can be difficult, but with practice it becomes a lot easier. Many foods are similar. See if you can work with a dietician or nutritionist that can help. We were taught some pretty basic rules of thumb that help in guesstimating. Part of what will help him might be just learning a certain lunch (a sandwich, an apple, a bag of chips, some carrots) are X carbs so he gets ___ units of insulin for it. Then he could eat that same lunch every day. For my son, he has lunch at school so I carb count his hot lunch every week and then the lunch ladies measure out what I say to give him and a teacher keeps track of what he eats. Might be something to consider with the school until your son is more comfortable.

My son's insulin pump also has a list of food choices and carb amounts loaded in it. I rarely use it, but it does come in handy and it might be easier for your son. (Of course, it would be very fast to put him on a pump, but some endo's will do it as fast as you want (our clinic did). With his pump, we just enter in the carb total and the pump does the rest of the math using settings I've loaded in (with his endo). It makes it much more fool proof.

Some things that help us when we are traveling is that I measure out amounts into a sandwich bag and then write on the bag the amount. Or using 3x5 cards to write down the foods and give a total so that he knows what to eat.

I'm sorry your training has been less than what you expected. I am so thankful that ours was very in depth and the trainers were willing to spend as much time as we needed to learn how. It is a LOT to learn. So keep looking until you find a care team that will work for you - they are out there.

Forum Post: Re: Daughter of 12yrs old

jesicaRN — Fri, 12 Nov 2010 20:37:00 GMT

I have a 10 year old daughter, she was just recently diagnosed almost 2 months ago. It shocked us all, but answered so many questions. We take it one day at a time and our coping method seems to be advocacy, education and empowerment. I hope you are both doing well. Hope you find the support you need.

Forum Post: Re: low blood sugar unawareness

orange_mms — Thu, 11 Nov 2010 06:28:00 GMT

[quote user="Scottie"]

I don't know how conversation works on this site.-----

[/quote]

Hello ! Just thought I could help with the starting a conversation topic. Add the person you wish to have a conversation with as a friend. Open your friends list on your home page (upper right corner) and click the start conversation button under picture. Then type your message and send. They will hit reply, type their message and send it back to you. I hope this helped.

Forum Post: Memories

Nads — Wed, 03 Nov 2010 21:15:00 GMT

I'm not sure why this thought crossed my mind today, but....

I was diagnosed in 1973, before pumps and bg meters. Diabetes was a pretty "secret" thing to deal with, really.

So recently, I was going through some photographs of my childhood and realized that I really have none, not one, that somehow attests to the fact that I have been living with this disease for 37 years! The funny thing is that I am somewhat disappointed by this! I guess since I've come to terms with it, almost embraced it, I feel that I should have some kind of "badge of honour" for all those years that I fought to stay alive!

Again, this began with sorting through old pictures. I am the youngest of four children, so as usual, there aren't many pics of me - no time! lol But there are no pics of me injecting, testing my urine, passed out from low BG... nada! The only one is a picture of me on the beach of the cottage we were visiting the weekend I ended up being taken to hospital and later diagnosed; I certainly was a lot lighter in weight than I had been previously!

So, my question probably goes out more to those diagnosed, say, 25+ years ago: What sort of tangible memories do you have? (Just curious!)

Forum Post: Re: "free" (under 5 carbs) snacks

GB Bongiovanni — Mon, 01 Nov 2010 20:19:00 GMT

I can't remember the name but there was a low carb yogurt that was only 3 total grams of carbs that my daughter liked for awhile.. Also bacon, sausage, and meats do not have many carbs in them.