Celiac Disease and Diabetes - Recent Threads

Insulin Resistance - Please Help!!!

KamrynsMom — Wed, 08 Feb 2012 06:40:24 GMT

My daughter has had type 1 for six years and Celiac for three. She is very insulin resistant and currently she is not responding to short-acting insulin and she is getting huge doses. Has anyone else had this experience? We are hitting one dead end after another. Please help!! Thanks!

Carb Counting

alexg0911 — Tue, 17 Jan 2012 20:27:47 GMT

Hey there!

Has anyone ever found a good resource for carb counting that includes gluten free options? Apps for phones/ipod, or books? When looking up carb information on the go, most of the apps I've come across have VERY limited info on gluten free foods.

Just wondering if anyone else has ever found anything that is helpful!

Alex

Gluten Free Cookies!

Onike R. Walker — Sun, 01 Jan 2012 14:26:49 GMT

Does anyone know if there are any gluten free brands that makes gluten free oatmeal cookies? I know you can buy the gluten free oats but I was wondering if there were any premade ones.

Endoscopy

Jaclyn — Thu, 08 Sep 2011 16:48:54 GMT

Hey I've had Type 1 Diabetes for over 3 years now, and recently had bad stomach pains. Went to a gastro doctor and put me on a Gluten-Free diet for the past month now and have felt a difference. It is genetic since my grandma has it. Tomorrow I am going in the hospital to get an Endoscopy in the morning and im kind of nervous about whats going to happen. I was told to disconnect my insulin pump the morning of, but im especially nervous that something will happen while im under, like my blood sugar going low. Has anyone had one done and can give me any advice? Thanks - Jaclyn

So it's not celiac sprue?

Maus — Sat, 03 Sep 2011 15:10:22 GMT

For the past several weeks I have been having some really weird digestive problems (ie stomach cramps, gas, loose stool). I couldn't isolate any one thing that was causing my digestive issues. One night I had 3 pints of stout (my very favoritest beer) and woke at 4:15 the following morning with all the symptoms. I had no idea what celiac disease was, but saw an article on Yahoo about the rise in celiac disease. I saw the symptoms and it freaked me out. I asked my endo for the blood test (she's awesome), and I went to get the test, it came back negative (if I'm reading the results correctly).
Now I gotta find the reason behind these digestive issues......I think I am going to eliminate wheat and gluten from my diet to see if maybe I have developed an allergy to wheat. It really isn't my favorite food anyway, it's just in EVERYTHING. It'll probably kill me, but I may experiment with eliminating dairy as well. I don't think it is a dairy issue, as I have symptoms without dairy and occasionally dairy without symptoms. I just don't know what it could be. Very confused.

Does Gluten Affect BS?

Mal — Sat, 20 Aug 2011 15:41:32 GMT

When I eat anything containing gluten, I have GI issues, cramping, bloating, and joint pain, so I think I may have Celiac's Disease. I've been gluten-free (and symptom-free) since mid-April, until about 3 weeks ago. I'm supposed to continue to eat gluten until my endoscopy in October. And for the past couple weeks, my BS has been crazy high a lot - for no apparent reason. I've asdjusted my scale, but I've still been getting a lot of random highs.

Basically, I'm wondrering if these weird BS readings could be due to Celiac's Disease.

Thanks :)

Celiac NON diagnosis ???

Christina Ruibal — Thu, 18 Aug 2011 15:15:56 GMT

My son was diagnosed 2 months ago with Type 1 diabetes, HOWEVER, he was far more symptomatic of GI issues long before. He tested negative on your basic allergy tests, but he stills has constipation and stomach pains and even sore muscle/ joint complaints. Well, today we went to the GI doctor to get the results for our endoscopy and tissue cultures. They say he is negative on the biopsy reports, but that he is positive for DQ8 allele. I asked what that meant, and the doctor said something to the effect that he is not diagnosed because the negative tissue results, but that with the diabetes AND his symptoms he may very well develop it. i asked if i should start a gluten free diet and she said that wouldn't put him on it because he still isn't a celiac by medical terms (positive tests) but that anything to help would be a good idea. !? i don't understand what that meant. As she was leaving and praising Zach for being healthy and well-behaved, she casually stated "....we are going to eat healthy and feel better. and we know that with diabetes we can celiac, and it's not the worst thing in the world. schedule a follow-up in 6 months unless he starts bloating or getting constipated again, and then call us." HELP! what the crap does 'allele' or 'DQ8' or 'he has the symptoms and the genes, but not the diagnosis' mean!?

Getting Diagnosed

Elie — Mon, 20 Jun 2011 20:40:11 GMT

Hello all,

I was wondering if you could tell me what symptoms you had when you were first diagnosed. I have been experiencing muscle weakness for months now and I have a history of anemia. I'm trying to figure out what's wrong with me. I know the Type 1 puts me at higher risk for Celiac, so I was hoping y'all could help me out.

Thanks!

Introducing myself

crystaldragon — Tue, 12 Apr 2011 21:26:56 GMT

I am a mom of an eight year old diagnosed with Type 1 in July 2010. He and I are not diagnosed celiac, but we had a naturepath muscle test both of us and we discovered we both had almost all the same intolerances to gluten and dairy. Within a month or two of switching our diets, I lost over 10 lbs, my son finally got "hungry" and started to eat and put on some healthy weight. About a year and a half later is when he was diagnosed with diabetes. He was still a picky eater, and now it just makes it that much more challenging. I am happy to see there are more and more options that are gluten free in the grocery stores ... eating out is still challenging with my son. Finding gluten free foods that he likes on a menu or even a fast food place is still a long way off. Another challenge is that I am recently divorced and my ex is just not on board with the gluten free foods and when my son is with him, he will always eat foods containing gluten, when he returns to me and his week of school, I am left trying to rebalance his digestion and moods. It is just plain hard sometimes.

Favorite Gluten Free Brands

sarahz — Mon, 28 Mar 2011 22:53:49 GMT

Hi Everyone, I've had Celiac's for about six month and am still finding what the best brands for gluten free brands are. I like Udi's and Kinnikinnick's bread. The grocery stores around where I live have been getting more gluten free options but I was wondering if anyone had any favorites. I'm always a little nervous to order new food online without trying it first because it's so expensive and would be a waste if it wasn't worth it. Thanks :)

celiac and type1

knurseh — Sat, 05 Mar 2011 20:12:33 GMT

Hi to all

i just wanted to intro myself diabetes since 1982 on pump since 2006 love it. some neuropathy issues, other then that good. recent diagnosis celiac last march. would love to hear any tips for that if you have them, traveling etc. new to website nice to see similair issues.

Diabetes & Celiacs

Heidi123 — Sat, 20 Nov 2010 13:09:12 GMT

Anyone have any really good suggestions on what to pack in a child's school lunch so they don't end up hating the same old thing every day? My daughter is a 9 year old diabetic/celiac.

how to ask

stilledlife — Sun, 01 Aug 2010 17:02:29 GMT

Just got back from camp yesterday and it has been floating around in my mind that I should be checked for celiac disease. I've already found that i am allergic to milk and many of my painful symptoms of food allergies has disappeared such as painful hand rashes and blisters, neurological problems, and joint and muscle pain and stiffness.

However after being able to talk with a dietitian at diabetes camp (because my insurance dietitians are not real) and telling her my story she she was pretty concerned that I should also get tested for celiac. Turns out my grandmother died of an upper large intestine cancer almost in the small intestinal tract. My mother is about to be investigated for the same problem =S. She also gets headaches when she eats wheat. And me, I'm just constipated (twice a week going) and still have eczema.

I want to ask my doctor for a test because if I can keep from getting cancer I'd like to. But I don't wanna sound to dramatic because I don't have major symptoms =p any advice?

newly dx where do you start?

tara m — Thu, 04 Mar 2010 17:18:33 GMT

Hi My daughter and myself were dx about two weeks ago. My stomach hurts everyday and am so tired!! Where do you start? Is there a book anyone likes. My son is also diabetic , he is tested yearly for celiac but so far it has come back negative. His stomach hurts all the time, I swear he has it too. Thanks Tara

inspiration for the overwhelmed

musicgal23 — Tue, 19 Jan 2010 00:22:42 GMT

Hi there. I am new to this site and just need a little encouragement. I am the only one in my family that has diabetes or celiac. i've lived with it just fine, but it does get hard at times and I feel like no one really understands what I am going through. Sometimes I wish I could just take a day off. I have to remind myself that things happen for a reason and all of my struggles have made me stronger. What are your inspirations? What keeps you going and taking good care of yourself?