Adults

Forum Post: Re: New Doc

jennagrant — Fri, 03 May 2013 14:48:00 GMT

This is kind of a left field option, but try emailing info@integrateddiabetes.com

Integrated Diabetes is Gary Scheiner's consulting company in PA. He's a type 1 exercise physiologist and may be able to recommend a good doctor in your area.

Forum Post: T1D Thesis Research

Jessica — Mon, 29 Apr 2013 15:47:00 GMT

Hello T1D Community,

My name is Jessica Smith and I am a former JDRF employee, from the Northern California Inland Chapter, as well as a T1D myself. I am currently a graduate student at DePaul University’s School of Public Service finishing my Master in Nonprofit Management degree. For my thesis project, I am examining the support network of teenagers living with type 1 diabetes (T1D) and the effect this support has on their health management.

This survey is intended for adults, 18 years and older, who have been living with T1D since childhood; you will be asked to reflect back on the support you received, and how you managed your diabetes during your teenage years, ages 12-17.

In this study, you will be asked to complete an electronic survey. In order to ensure that all information will remain confidential, please do not include your name. Your participation in this study is completely voluntary and you are free to withdraw your participation at any time. If you choose to participate in this project, please answer all questions as honestly as possible. The following questionnaire should take no more than 10minutes to complete. There is no compensation for responding, nor is there any known risk.

Thank you for taking the time to assist me in my educational endeavors. The data collected will provide useful information regarding teenagers living with T1D. Completion of the survey will indicate your willingness to participate in this study. If you require additional information or have questions, please contact me at the information listed below.

Thank you again.

Sincerely,

Jessica A. Smith

Master in Nonprofit Management Candidate 2013, DePaul University

T1Dcapstone@gmail.com

To complete the survey please click the link below:

depaul.qualtrics.com/SE

Forum Post: Newly Diagnosed Adults

Gina — Tue, 16 Apr 2013 00:12:00 GMT

JDRF is proud to announce the launch of a new resource for newly-diagnosed adults living with type 1 diabetes (T1D). The Adult Type 1 Pak (shown in this photo) will include important resources and information to educate, support, and inspire adults, age 16 and above. In collaboration with JDRF's generous Industry Partners - Diabetes Care by Bayer,Medtronic Diabetes, and Novo Nordisk - the Adult Type 1 Pak is now available through local JDRF Chapters, and is free of charge. Read more about the Adult Type 1 Pak and learn how you can get one here: http://jdrf.org/press-releases/jdrf-announces-new-outreach-kit-to-support-adults-newly-diagnosed-with-type-1-diabetes/

Forum Post: Re: Which Pump to Choose?

Calla — Sun, 17 Mar 2013 13:34:00 GMT

I have an omnipod -- and its the only pump i have ever had. I love the fact that there are no tubes, and I can throw the testing meter in my purse and not have to worry about it. At first, the pump itself is a little bit difficult to wear... so try it on your stomach area or on your side (the one you dont usually sleep on). The first time I wore it, I put in almost right next to my belly button --- and it felt VERY awkward.

At first, do not try your arms... you'll learn that you will turn the corner into another room, or get it stuck/rip it off while trying to get into the car and stuff too.

Again, I LOVE my omnipod, and I dont mind that the CGM isnt attached to it. I like the freedom it gives me, and that I dont have to have the device constantly on the side of my pants. If you have any other questions -- let me know. Ive been using it for 7 years now.

Forum Post: Re: Anyone have any experience with Rheumatoid Arthritis and Type 1?

Nikki — Wed, 27 Feb 2013 17:23:00 GMT

I just saw my Rheumy yesterday and he said my blood test showed a low number for the rheumatiod factor but that my swelling in my fingers was worrisome. I have to do another round of blood work to determine what treatment route he can take and I will see him again on March 22. I told him I would like to hold off on meds until after my husband and I (finally! Ugh) get pregnant and have a baby. So we will discuss all that when I see him again. I sobbed after my appointment. I hate hearing, "because you already have an autoimmune disease you are at higher risk of getting others". Kick rocks. I'm tired of those phrases. I know this isn't the worst thing that could be happening but it doesn't help me out emotionally and mentally. I'm just over it all.

Side note, the doctor was very patient with me and made sure I understood everything he was telling me and answered all my questions. I like a doctor that takes that time!

Forum Post: Re: Medtronic users?

Joe — Tue, 26 Feb 2013 22:42:00 GMT

in 2010 medtronic had about 58% of the entire US market with Animas at another 12% these 2 pumps still currently rule the domain. it was also estimated that the entire US market for insulin pumps in 2010 was 460 million dollars worth. to put it in perspective, Medtronic gross 2012 earnings was 16 billion dollars, so in fact, medtronic could probably care less if there was a cure for diabetes - since it's about 1% of their company - I am just glad they haven't outsourced the insulin pump department to China.

edited: oh, I'm sorry Brad, yes I am a minimed user, had 2 minimed pumps so far, they've been great, for me it beats the pants outa shots.

Forum Post: Re: Newly Diagnosed

Ebgineer — Fri, 15 Feb 2013 05:26:00 GMT

I'd like to reiterate what Scott said. When I was newly diagnosed I went into honeymoon stage and had to stop taking any insulin at all for a couple of months, or else my blood sugar would get low. Keep making adjustments until you find what is right for you. Just don't make big changes or make them too frequently, or you won't be able to determine the effect.

Forum Post: Re: How long have you had T1?

Jeff — Wed, 13 Feb 2013 00:10:00 GMT

I was diagnosed just before my fourth birthday in July of 1972. No complications as of yet. No pump, no CGMS. My lifestyle and methods may seem archaic, but they work for me and have kept me clean for over 40 years.

Forum Post: Re: How to get on track and stay on track.

Jeff — Wed, 13 Feb 2013 00:01:00 GMT

Josh the one thing that has kept me on track my entire life has been the knowledge and fear of the complications that can result from not taking care of my diabetes. You can make every excuse in the book to not do what is right for your diabetes care, but complications hear no excuses and will deliver themselves upon you without hesitation. If you place any value upon having vision in both your eyes, having both feet and all toes intact, and not being subject to weekly dialysis because your kidneys have failed, that is about all the incentive anyone should need. It certainly has worked for me.

Just remember that when complications set in, there is no amount of "living right" that will take those complications away. No one can do it for you - you have to do it for yourself.

Forum Post: Re: REAL late type 1 onset

Maureen Helinski — Fri, 08 Feb 2013 02:25:00 GMT

I have to say some good words about the Minimed 723 pump and CGM. For one thing you have to find good places on your body for the CGM. I use my thighs toward the inside and generally keep a sensor in for about 10 days. I do recharge after 7 days but I have two transmitters, so that is easy and fast. I always tape the sensor and transmitter with Opsite flexifix tape so it doesn't move during exercise or swimming etc. I often turn off all the pump/sensor alerts when I sleep so they don't wake me up.(I know they are supposed to keep me from going low but I know my body and basal rate and don't go low unless I have bolused too much etc.) During the day I love the alerts. But I know others who have had problems with the MM system.

Forum Post: Re: Does anyone get Headaches when high?

Jeff — Sat, 26 Jan 2013 15:33:00 GMT

Those muscle cramps and joint aches come from your body going toxic and producing tanic acid in the muscles and around the joints. If this becomes bothersome while getting your readings down, you can use white vinegar to massage into the affected areas, this breaks down the tanic acid and removes the knots you feel, works well too.

Forum Post: RE: Workplace Discrimination??

jennagrant — Tue, 22 Jan 2013 22:59:00 GMT

The gastroparesis makes total sense. It makes it impossible to dose insulin and causes unpredictable highs and lows. I don't see how you could work, especially a high stress job, with GP. I've only personally known one person with it and he was retired, but in overall good health. He had to move from our rural area to be closer to a hospital since the GP caused severe, impossible to predict lows.

I know pumps always have the warning label that you can have more frequent lows, but research shows that they're effective at reducing hypoglydemia (see the Google links below). They still "cause" hypoglycemia because they deliver insulin, but at a lower rate than multiple daily injection.

Unfortunately they can't do much for your situation. Sorry you're having to deal with GP.

www.google.com

Forum Post: Re: Workplace discrimination??

Jeff — Wed, 16 Jan 2013 22:56:00 GMT

Discrimination is always the concern, it was so bad at one time, I wouldn't even mention I had diabetes. There are those that disagree with that, but you do what you need to, keep working while you can. Now being disabled for so long, it is not an issue, and that is a small comfort.

Forum Post: Re: Symlin

Maureen Helinski — Mon, 14 Jan 2013 23:08:00 GMT

I didn't really change the carb ratio, but i use less insulin upfront than the wizard tells me. At least one unit of insulin less. Then I bolus that amount 1 1/2 hours later. I am now using 120 mcg of symlin, mostly because using the syringes for 100 mcg was too much trouble. I have gotten used to the 120 now. It works fine. I eat what I want (within reason) and don't go above 200. My last A1c was 6.3. I am anxious to see if this stays at that level. I wish the symlin were mixed with the insulin. I heard they are trying to do that, among other things.

Forum Post: Re: High Blood Glucose No Matter WHAT I Do!!!!!

Emily Petit — Mon, 07 Jan 2013 22:19:00 GMT

It's funny, I really hadn't thought of that - but it's a very good idea! Thank you!

Forum Post: Re: Stopping T1 diabetes with an old vaccine?

jennagrant — Mon, 07 Jan 2013 21:38:00 GMT

Thanks Scott. I wasn't sure if the Faustman research was still ongoing.

Forum Post: BLOGS! :)

Ashley — Tue, 04 Dec 2012 20:44:00 GMT

Hey there. My name is Ashley. I have been Type 1 Diabetic for 4 years now. I have a blog that normally revolves around diabetic topics and I would love if you would read some of my posts and give me some feedback. Also, I am asking for suggestions for topics! What do you want to hear about?! :) Please leave comments.

Here is the link to the blog: www.iamjuvenated.blogspot.com

Forum Post: Re: Diabetes and Obama Care

brad68der1 — Tue, 04 Dec 2012 12:30:00 GMT

Susie,

Because they know their care will be limited.

Randy,

Without going down a political road, which is very hard to do, my comment was not biased in the sence that I am politically active in my community but is biased based on the fact that I have T1D.

Doctors are pushed to the limit now, drug stores do not carry the exspensive medicines because of the cost, I have called my order in for insulin many times and have been told, "That will take a week" Why? Cost....It is very exspensive to stock Humilog at a cost of $140+ per bottle they wait till they have an order then they order it themselves to fill the customers needs.

Now add millions to that system. You tell me, will we be able to get our meds on time? I hope so.

Forum Post: Re: Do you ever experience lows and/or highs without even noticing?

jennagrant — Mon, 03 Dec 2012 15:06:00 GMT

I had it too after about 25 years with diabetes. I'd feel totally fine and be surprised when I tested and my blood sugar was 19. Eventually I had early morning low blood sugars that left me unconscious. I would have died if my husband hadn't been there been there to get cake frosting, and orange juice once I was coherent enough to swallow, in my mouth.

When I got the insulin pump my blood sugars drastically improved and the hypo unawareness reverse.

Plus I always test before I drive. And as a new mom I tested frequently anytime I was home alone with my baby so I didn't put us in danger.

Forum Post: Re: Just diagnosed

tioneerdrich — Fri, 30 Nov 2012 21:42:00 GMT

Hi Naomi-

I have just recently been diagnosed with T1D- 34 years old, active, etc... Anyway- I found a great company that makes awesome diabetic bags... Stick me Designs. They are on Facebook too! Really cute stuff.

Good luck with your DX.

-Tione