Search

Re: How long have you had T1?

Adults

If you are an adult with type 1 this is the place for you!

How long have you had T1?

  • rated by 0 users
  • This post has 108 Replies |
  • 51 Followers
  • August will be 44 years. Diagnosed at age 10. Absolutely no complications to date. One perfectly healthy pregnancy 31 years ago (congrats to you too Jenna).

    Donna

  • 4 months still trying to wrap my head around it all, at age 42.

    Diagnosed January 6, 2011

  • That's great to hear!  Keep doing whatever you are doing!

    Medtronic Pump, 1998  &  CGMS 2008

    DxD: aug 1972  Age 10

  • I wish you well - this seems like a great place to get solid advice ...

    Medtronic Pump, 1998  &  CGMS 2008

    DxD: aug 1972  Age 10

  • I have had Type 1 for 19 years now just had my anniversary June 6th! Congrats to you on 40 years with very little complications, that is wonderful and takes a soldier to achieve! I unfortunately did not take the best of care of myself for a while and am now living with Systemic Nueropathy and Autonomic Nueropathy which are treated with nerve meds and pain meds. I am now working harder on taking better care of myself! Like Andrew said "Here is to many more healthy years!"

  • 44 years with a couple of minor complications.  Been on a pump since 1982 starting with an autosyringe.

  • Hi. I was 5yrs. old when dx'ed. That was back on March 17, 1963!  43yrs of being type 1 is challenging! I do have neuropathy in feet and hands. But it could be worse!  Here's to another 40!

  • I was diagnosed at age 10, October 29, 1972. I have proliferative retinopathy in both eyes with my left eye being the worst. I have laser treatment in both eyes but I have been fortunate so far that when I have had a bleed that the blood was not in my central line of vision and for the most part with time dissolved on its own so that I have not had a vitrectomy as some of you have had to endure. I have some circulation problems in my legs which means that my exercise for someone my age is not quick or long before having to rest. Overall though I consider myself quite fortunate and continue fighting to avoid the complications that I can. I also have been on an insulin pump since 2000.

  • I was diagnosed March 2010, so about a year and a half ago.

    Type 1 since March 2010
    Medtronic Minimed 523 

  • Only 2 weeks for me. Congrats on living well for 40 years! My mother-in-law also has T1 and she was diagnosed 45+ years ago. She told me that when she was first diagnosed her only gauge of her numbers was from peeing on glucose/ketone strips, and then when meters first came out, they were as large as a small computer.

  • Alex,

    I know it must be somewhat shocking to find that you have T1 just as you are finishing your masters.  Like your mother-in-law said .... it was true except that they also had a test tube that you added 2 drops of urine and 10 of water and dropped a tablet into - the color determined what your blood sugar was 2 hours before. Good luck to you  ... If I could offer any advise, I  would try to keep your BG as close to normal as possible and stay shape.  I think that would have have helped me in my younger years...

    Medtronic Pump, 1998  &  CGMS 2008

    DxD: aug 1972  Age 10

  • Good luck Shauna!   Now that you have a pump, it should give you the flexibility to eat when you want and if you get the CGM (which is not perfect, but sometimes awesome) you won't have to worry about checking you BG all the time.  

    Yes, taking care of you diabetes is a FT job!

    Medtronic Pump, 1998  &  CGMS 2008

    DxD: aug 1972  Age 10

  • Anita, did you get retinopathy after you got the pump?  That's what happened to me.

    Medtronic Pump, 1998  &  CGMS 2008

    DxD: aug 1972  Age 10

  • I always laugh at how far we've come.  I was Dx'ed on Halloween Night 1977 at 6 yrs old, being brought to the ER, throwing up and passing out.  I was told by the Doctor.. "well we have good news and we have bad news... the good news is that you aren't dying,  the bad news is that all that candy you just got... you will never be able to eat it or any thing else with sugar in it for the rest of your life"  Nice huh?  At that point, I too did the test tube tests for Urine sugar testing and the only "diet" things were Tab soda and some really nasty cake mix type stuff that you could find at Gloria foods or specialty shops.  Now on the CGM and getting on the pump within the next month or so.  I went from a A1c last august of 13.9 to 6.3 last week.  I have had every complication from diabetes with the exception of having body parts amputated!  And we got wayyyyy to close to that last winter when I shattered all three bones in my ankle and it didn't heal right.  So now...fused ankle and all... I am much more "on the bandwagon" than not and even though this disease totally sucks the life out of me.  Im still going 34 years and keep on truckin thru.  

  • Awesome for you!!  I get a little concerned about having T1 for 50 years ... I just don't know how well my body will adjust to healing as I get older.  Doing well now and trying to stay healthy and in shape ...

    Good Luck to US ALL

    Medtronic Pump, 1998  &  CGMS 2008

    DxD: aug 1972  Age 10

Page 2 of 8 (109 items) 12345»

ABOUT TYPEONENATION
TypeOneNation is a vibrant social network created especially for and by people with type 1 diabetes and their loved ones. More about TypeOneNation

Terms of Service | Privacy Policy

 
DONATION
Please consider making a donation to JDRF to support research toward better treatments and a cure for type 1 diabetes.

SUPPORT
For help on TypeOneNation you can view answers to common support questions or contact us.


JDRF is the worldwide leader for research to prevent, better treat, and ultimately cure type 1 diabetes. It sets the global agenda for diabetes research, and is the largest charitable funder and advocate of diabetes science worldwide. More about JDRF TypeOneNation is funded through an educational grant from Novo Nordisk through its Changing Diabetes© leadership initiative. More about Novo Nordisk